I'm so sorry you're in such pain - I don't know personally, but I'm very close to someone who does...she is my friend and was my cat sitter until very recently. She has neuropathy below her knees and it's just excruciating to watch. She also has Lupus. The doctors cannot say whether one has to do with the other, but after hearing Mary got it after shingles, it makes me feel there is a connection between Immune System diseases (which both Lupus and Shingles are) and this neuropathy. I'm going to print out this thread and give it to my friend to check out the meds; I'll ask her as well what she's on, but I don't know how much help that will be. She has no insurance and is at the mercy of what the state will do for her, so I don't know how good her treatment is.

Please keep us updated and, as I said, if I get any further information I'll post it for you. Good Luck and let me know if you need to vent.

Maggie