My prolactinoma has grown :-/

[Kirsten]

Been diagnosed with a pituitary gland tumor ten years ago. Meanwhile, I know it's an active prolactinoma. Since my prolactin levels were recently rising, I had an MRI yesterday and as it turned out, the tumor has grown. So far, I don't know what that means for me, but I'll see my endocrinologist next month. In case she'll suggest medication, I'll decline it. Not only that the side effects are nausea and vomiting (which would be the ultimate hell for me, being emetophobic), there's also the risk of developing a psychosis, and the very thought of that scares me to death. I think I would rather have it surgically removed, and I hope my doctors agree with me.

Also, I wonder to which degree the prolactinoma is responsible for my various health issues. After all, I'm also dealing with Hashimoto's, and both of it are affecting the entire hormonal system big time. I'm so very very tired of all this.

Off to physio therapy now (yes, my spine is another huge issue!), I'll write more later...

[Karen]

I have a friend who had a pituitary tumor removed when she was a teenager, and was basically fine, just had to take a pill every day afterwards, but was able to lead a normal life. Hopefully they can help you!

[Randi]

Oh Kirsten, I hope you can have it surgically removed. Sending my best wishes!

[Kirsten]

Thank you, Karen and Randi.
Yes, I hope surgery would be an option, but I sure hope I won't have to take those meds for the rest of my life (due to the mentioned side effects)!

And then there are still these plans re. a spine surgery, supporting the spine will metal rods. This is something I also fear. What if I cannot move afterwards? What if I can no longer take pictures because I cannot bend my back?

There are just so too many issues to deal with; honestly, I don't know what I have done to deserve all this. and sometimes I wonder if it's really worth fighting for. For what? I'm all alone in this world, and always will be.

[happylabs]

That doesn't sound like any fun at all. I have a similar thing with the parathyroid and possible removal of that at some point.

Hope it works out for you some way or another.

[Kirsten]

That doesn't sound like any fun at all. I have a similar thing with the parathyroid and possible removal of that at some point.

I'm so sorry to hear this! ( What kind of problem does this condition cause? This hormonal stuff is so tricky!

[cassiesmom]

For what? I'm all alone in this world, and always will be.

you have us ((((HUGS))))

[happylabs]

you have us ((((HUGS))))

Yes...you are not alone! We all may be miles away but we are still here for you. I know it is tough going it alone sometimes. But honestly you are not completely alone.

I don't know if you are religious or believe in God but that is what has gotten me through many bad times and I would never have survived my divorce 10 years ago had it not been for my faith.

If you don't have that type of faith, just believe in life itself. And, you have your kitties! I love my kitties and I talk to them and tell them my problems. I don't know if they understand but they certainly are a comfort.

Hang in there!

[Randi]

Kirsten, the medicine you will get, might be something completely different, hopefully with no side effects. Is it an option to train your muscles? When I had back pain years ago, I went to physiotherapi 3 times a week for 7 weeks and it really helped. Still, I cannot carry too heavy bags without getting back pain.

I hope you will find a reason to keep fighting, I know it's hard in this world, and the politicians don't make it any easier.

I wish you all the best - and big hugs!

[mrspunkysmom]

Kirsten, I am sorry to hear about the tumor. Prayers and pawsitive thoughts headed your way!