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Thread: Johanna (Cataholic) & Sister Jessica continue to Request Prayers for young Samantha

  1. #706
    Join Date
    Jan 2003
    Location
    at beginning of the script.
    Posts
    5,279
    sounds you guys had fun last sunday! oh I know how not enough you could express how you're so thankful but I (we) know you really, really appreciate us a lot!!

    I'm so glad that our little trooper sammy is still around, and that she was in a chicken suit, feeling good enough to.

    little sammy still continues in my thoughts & happy early halloween! take care hugs,

    ..gina & everyfurriends
    rest and sleep softly sweet locke..



  2. #707
    Join Date
    May 2001
    Location
    Stockton, CA
    Posts
    8,687
    You GO, Girl!!! Snugglies to {{{Sammy!!!}}}
    I'm sometimes asked "Why do you spend so much of your time and money talking about kindness to animals when there is so much cruelty to men?" I answer: "I am working at the roots." -George T. Angell, reformer (1823-1909)



    Thank you, Popcornbird for creating this tribute to Summer starring Livvy and Cassy

    Livvy: 11 April 99 - 5 July 09
    Cassy: 11 July 99 - 8 April 11

    If you would like to visit my BeautiConsultant page --
    http://www.beautipage.com/serene_angel_hm_spa/

  3. #708
    Join Date
    Dec 2004
    Location
    Ban stupid people NOT dogs!!!
    Posts
    17,099
    You're such a trooper, Sammy! (((hugs)))
    Krista : Buster : Coonhound : Rudy : Airedale Terrier x : Dixie : Schnauzer/Terrier X : Miagi : Tabby : Tiger : Tabby/Bengal X : Angel : Russian Blue X

    Rocky, Jenny, & Ginger.. forever loved & always in my heart..

    I have been frosted!

  4. #709
    Join Date
    Dec 2002
    Location
    My life is God filtered :)
    Posts
    14,046
    Dear Sammy,

    You and your family have been in my daily prayers and it does my heart good to see such a positive reponse. So now you know how to crawl....will be there any stopping you now?? I sure hope not. Bless you sweetie...we are all pulling for your continued recovery.

    **it's funny how we can all come together and love a child that we've never met**
    Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body, but rather to skid in sideways, champagne in one hand and strawberries in the other, body thoroughly used up, totally worn out, and screaming WOO HOO - What a Ride!
    --unknown

    Sometimes the most real things in the world are the things we can't see
    --Polar Express

    Until one has loved an animal, part of their soul remains unawakened.




  5. #710
    Join Date
    Jul 2004
    Location
    Somewhere over there!
    Posts
    743
    Yeah Sammy! Way to get moving!
    Chris

  6. #711
    Saturday, October 01, 2005 at 07:34 AM EDTSam's last labs were okay, and she's continuing w/OT & PT.

    Her skin is healed enough to begin looking into prosthetics, though we are still trying to track down her "pressure suit"; we were supposed to have it in August.

    She's sleeping better at night--and so are we--and the vomiting has lessened quite a bit since her cold started clearing up. She spent a couple of half-days at her daycare, and did well; Rob must return to work eventually, so we want to get her back in the swing of things. She is still scooting and crawling, and just seems a lot stronger these days.

    Sam had a wonderful time at the Brown County Fair yesterday, and LOVED the merry-go-round. We had to keep taking her on it, as she threw a fit each time it stopped.

    Next week it's back to Children's for the kidney check; I'll add more then. And yes, I took some pictures at the Fair, and will try to get those and all the rest up before too long.

    Thanks,
    Jessica



    GOOOOOO, Sammy!!
    /s/ Cinder, Smokey & Heidi

    R.I.P. ~ Boots, Bowser, Sherman, & Snoopy

  7. #712


    Saturday, October 08, 2005 at 05:44 AM EDT

    Labs are still holding steady, and the scope went fine--a quick 20-minute procedure. Everything looks okay, and there's only a small amount of scar tissue, which shouldn't interfere w/anything. They will check again in 6 months.


    Sam's kidney doc and the dietician want to try taking out the feeding tube, and seeing how Sam does; she can take some of her formula by mouth, and they think she'll get hungry enough to start eating. We start Monday; please hope for a hungry Sam!

    I think it will really help when she's sitting w/her friends at daycare, seeing them eat. She did well at daycare last week, and is in w/the preschool group, as the slightly older kids can better understand what to do and not to do around her. Sam's really enjoying herself, and we are so grateful to Karen and Dave and the rest of the staff for providing such a safe and nurturing environment for her.


    We are hoping that Sam can perhaps be completely "cordless" by Christmas; they will remove the PICC when she's down to getting labs only once a month, and the dialysis catheter (they would've removed it yesterday, but couldn't, due to surgeon availability) will maybe come out in a couple months. We'll be talking prosthetics soon, too, so exciting things are coming down the pike for Sam as the year winds down.


    Thanks,
    Jessica

    -----------------------------------------------------------
    "Cordless by Christmas" sounds good!
    We'll ask Sandy Pawz to send some batteries!

    GO, SAMMY!!
    ------------------------------------------------------------
    /s/ Cinder, Smokey & Heidi

    R.I.P. ~ Boots, Bowser, Sherman, & Snoopy

  8. #713
    Join Date
    Jun 2000
    Location
    Waltham, MA, USA
    Posts
    36,762
    Sounds good, still in our prayers. I agree - there's probably nothing better than see her buddies eat to make her want to do it, too!

  9. #714
    Join Date
    May 2005
    Location
    Buenos Aires, Argentina
    Posts
    3,470
    You're still in my prayers, Sammy....
    Lola, the mutt, 2 years old

    Anita, the dachshund, 7 years old



  10. #715
    Join Date
    Mar 2001
    Location
    South Hero Vermont
    Posts
    4,747

    Sammy is always on my mind.....

    I think of this child and her family nearly every day, several times a day. I hope she is continuing to improve and that life begins to resemble something rather ordinary for all of them. Sammy and her family ARE exceptional people!

    I hope they are all fine..........

    Keep up the hard work.......

    Thinking of you Sammy dearest.

    Love,

    Camp Vermont

  11. #716

    She's *Eating* !!



    Sunday, October 16, 2005 at 08:41 PM EDT

    Well, the feeding tube came out Monday, and Sam is managing to eat and drink like the big girl she is. The eating was slow--bite by bite--for most of the week, but really picked up this weekend.

    She went out to eat with Mom and Dad tonight, and really put away the fish and tartar sauce; Mom even managed to get most of the sauce out of her hair by the time we left. She's drinking plenty, and the doc said that was the most important thing in the beginning.


    On Monday, she saw her eye doc, and he was pleased; her nystagmus (eyes rolling back and forth, common in albinism)has decreased, and her illness seems to have had no effect on her vision. She will probably get glasses next year, as they seem to help lots of kids w/albinism, but her doc said there's no rush, as toddlers either won't keep them on, or break them, and after all she's been through, he didn't want to start something new right now.


    Before her appointment, she got to spend some time w/her cousin Jonah (or "Jono," as she calls him), and see Grandma. She had a great week at daycare as well.


    Her plastic surgeon, who also works at Shriner's, wants us to reconsider Shriner's for her rehab; he had already spoken to them, and told us that they'd be willing to accept her back for rehab, which would mean they would coordinate therapies, prosthetics and any future surgeries. He says we would start on a "fresh page" with them, and is setting up a meeting for all of us to discuss this possibility. He feels her rehab would be best handled by those w/the most experience w/cases like Sam's, so we'll see. We have another kidney check-up Friday, so keep your fingers crossed for Sam.


    Thanks,
    Jessica


    ----------------------------------------------------------------------------

    Fish 'n' Sauce looks Good on ya, Sammy!!

    ---------------------------------------------------------------------------

    /s/ Cinder, Smokey & Heidi

    R.I.P. ~ Boots, Bowser, Sherman, & Snoopy

  12. #717
    Join Date
    Aug 2001
    Location
    California
    Posts
    13,010
    This is great news! Thanks for the uppydate, Phred.

    Glad to see the feeding tube is out and she's enjoying eating and being with friends/family.

    Go Sammy, Go!!
    ...RIP, our sweet Gini...

  13. #718
    Join Date
    Apr 2002
    Location
    Munich
    Posts
    15,287
    After I came back from my vacation I wondered how Sammy was and I am so glad things are going more towards a normal life. Being in daycare, going on a merry-go-round, meeting cousin Jonah and of course eating Like Sallyanne I think of Sammy and her family all the time.
    Thanks Phred for keeping us updated

  14. #719
    Join Date
    Feb 2001
    Location
    Greenville, SC, USA
    Posts
    17,963
    I saw there was an update on my email this morning. What delightful news!!!

  15. #720
    Join Date
    Mar 2001
    Location
    South Hero Vermont
    Posts
    4,747

    Yes!

    Sammy, you go girl! Can't wait to see a photo of this child....ahemmmmm!


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