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ThosThis whole situation just sucks for her. Kelly is such an angel, she doesn't deserve this constant crap. It's so unfair. I hope you find a new doc, Kelly. Speaking for everyone, it breaks our hearts to see you suffer. And I can't believe the nurses are so nasty. Hugs and prayers that you're feeling better now.
Hoping Kelly is better now- and that she'll be able to find better help.
Oh poor Kelly! :( I hope she'll feel a lot better soon, and stay that way!
Sending hugs and good thoughts.
Sending prayers to Kelly.
Thank you all for your constant care, concern and love for me. I needed it this time.
I'm seeing a new Pain Management doctor and we're tweaking my pain meds to get me on something more constant. I'm currently on 2.25 mcg/h Fentanyl patches, and then I can take 1 norco every 3-4 hours as needed. On Friday, it wasn't enough and my pain got too strong for me to handle on my own.
I had to go to the ER, where basically everyone there was rude and horrible. I just don't understand why they are being so horrible to me. :( I'm a nice person...I don't get it. I TOLD them NOT to call my GI - he's repeatedly told me this is NOT related to Crohn's. They called him at midnight. When I woke up at 7:30 on Saturday, I felt fine physically, but he was mean to me too!!! He told me "I have bigger and more important things to deal with right now" when I asked if I could just go home. He got mad they called him at midnight, asking me when I was taken back in the ER...if you don't want to be called, maybe you should re-think your career!! Idiot. :(
I'm horrifed that my doctor was so mean. I send him holiday cards, bake him goodies each time I come in...I'm nice, I do what he wants me to do...and I'm treated like an annoyance.
My nurse was the same nurse my mom complained about during my last hospital admission before my surgery. That nurse KNEW me when she saw me and didn't miss a chance to be a complete witch to me. I can't win. I guess being a patient with severe, relentless pain makes me an annoyance.
I'd NEVER sign myself out against medical advise. I'm not the one that went through 8+ years of school (yet)...I've always respected my doctors...and even my horrid nurses. This was too much. I WAS allowed to go home, like Staci said. My nurse purposely drug her feet, it was obvious, even to my roommate. :(
I just don't know what I did to deserve such treatment. :( I'm the one who's life is almost ruined because I'm so ill...how come they're so mean to me?
From now on, I will not set foot inside Los Robles again. If I require emergency services again, I'll be going to Cedars Sinai, where patients are respected.
I did pull my own IV out, but at this point, I can pretty much insert my own IV. I've had so many and know what to do. My friend CiCi is a vet tech (animal nurse) and told me what to do over the phone. I applied pressure, added a bandage and left. My nurse called my cell phone while I was driving home, but I didn't answer. I'm sure she'll just write in my chart what I did and that'll earn me a "caution" or "bites" sticker... ;)
I'm sorry to have worried you all...I didn't mean to. I didn't call my mom because I didn't want her to worry. I know my body and knew that all that happened was the tweaking of my pain meds enabled the pain to get too strong for me. I know I was fine and after the million times I've (and my family/friends) already been through it all, I didn't want to needlessly worry anyone.
Thanks so much for your kindness, guys. You're all my angels and I adore you!
Love, Kelly
I apologize for my confusion Kel - we get people that sign out all the time like that - we had a guy Friday nite that was having an acute stroke and signed himself out. I hope that I fixed my mistake in my later postQuote:
Originally Posted by NoahsMommy
{{hugs}}
Kelly, I'm so sorry you're having to go through all this. I would definately be finding a different doctor. That's what I had to do with my female problems. I can't believe the way in which you were treated. You need to document it and write a letter to the higher ups so they will know what is going on at that hospital. This is inexcusable and they shouldn't be treating people like that. No telling how many people have been mistreated.
His medical license should be revoked. What a jerk. If your pain isn't related to Crohn's, then he should be recommending another specialist. That's what my doctors did. Over the years, I've changed doctors at a drop of a hat until I found ones who really cared that I was stooped over , walking like I was 90, and in pain for 30+ years. They all called me at home when they found out my mom died! They didn't have to do that. I'm so blessed. They all believe that in this day and age, there is no reason a person has to be in agony, and if they are, there's a reason, and let's find it. I'm so angry for you! My mom was in the hospital 9x in one year and we always either had or passed by the same ER nurses and doctors, and they always came in to say hello, sorry you're back etc. When the waiting room was full, we got taken right away. The nursing manager is always around and I know that if the nurses don't make the grade, they're reprimanded, suspended or fired. When my mom, at one time, in ICU, got manical and rude (not like her) and God Bless those nurses who took it in stride and were as sweet as could be. I was embarrassed and apologized, but they said not to worry about it. I don't mean to go on and on, but I can't believe YOU of all people, sweet as you are, could be treated like crap. My theory is "what goes around, comes around". Please please find a new doctor and check the medical board for his credentials and any complaints etc. They should be ashamed of themselves.
Sorry, I'll get off my soap box. But you and I are "old pros" at this stuff. I pray for you every night that you feel better. I hate that you're still suffering so. It breaks my heart. I don't know you that well, and I never met you, but I feel like you're a girlfriend and I care very much about you.
Kelly I am so sorry you are suffering this pain and on top of it you are being treated so poorly. Sounds like they are a bunch of bullies and they know how nice you are so you are an easy target....it makes me really mad. You definetely need to find somebody that will treat you right.
You poor thing. :( I'm so sorry that hospital is treating you like that. :(
*HUGS*
I hope your new doctor is much much nicer.
I think that one of the biggest problems Kelly encounters - is that so few people really understand her disease.
I have some dear friends and the husband who is in his 60's, has Crohn's.
Several years ago they stayed with me for over a week for a family wedding.
I can tell you first hand - that this disease causes huge problems for a man who has had it for years. He would not eat so as not to upset his system and several times during the week he could not attend various functions because he simply did not feel well.
You never know............it just hits you............and it is difficult to get your body back in control.
He is also on many medications........all to control it.
Because this is new for Kelly - (just a few years) they are trying so many ways to help her - so she has to take many medications. A clerk can make a bad judgement at the pharmacy - and assume Kelly is just a druggie.
Can you imagine how that makes her feel? It just breaks my heart.
Our support for Kelly means more to her than she could ever express. All of us have been able to follow her ups and downs - and hopefully have a better understanding of why this happens to her.
I am one of the very fortunate ones who knows Kelly - and I can attest to the fact - when she is in pain - she isn't kidding or overreacting........she HURTS!
She needs our prayers and support and it is great we are all here to give her what she needs from us.
Here we have been and here we will stay, as long as dear Kelly needs us. I just wish I were closer :( Try to stay strong and hopeful beautiful Kelly, as hard as it must be at times like this. We love you.
I'm so sorry, Kelly:( You don't deserve any of this...... You're in my thoughts. Sending prayers for you.... Hope someday you can finally leave all your pain behind... (((hugs))))
I've signed myself out of the hospital AMA....twice. Doctors will always go the conservative route....and ....well anyway.
Slick....not giving out patient information is ....for good or bad.... the law in the US. I had a an employee who had a question about a medical claim for his 13 year old son. We had to get the written permission of the son to pursue the question. Goofy...but the law....
Oh my gosh! How out of the loop am I?! :( I continue to hope and pray that someone will be able to help Kelly to feel better. She has already been through so much. I can only imagine how frustrating it would be to do everything right, but still suffer from the pain of this disease. It wears you out physically as well as emotionally.
We all love you, Kell!
**hugs**