Quote:
Originally Posted by shais_mom
Is that really a good thing to do? I hope she'll be o.k. Prayers that she
will be.
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Quote:
Originally Posted by shais_mom
Is that really a good thing to do? I hope she'll be o.k. Prayers that she
will be.
Oh Staci, thanks for the post. I called the hospital at around Noon and they told me that she was having some tests done and didn't know when she would be back in her room so was planning to call right about now, but saw your post. I'm going to email you.
What's AMA?? :confused:
In this case it means....Against Medical Advise
I will certainly say a prayer for Kelly.
I must reiterate here - my MISTAKE-Quote:
Originally Posted by shais_mom
Kelly did NOT sign herself out AMA. Her dr wrote her discharge orders at 8am this morning and she was to be released if (1) she had not had any pain meds (she hadn't) if (2) she finished her REMICAID (she did) (3) and if she ate lunch without pain or getting sick (she did that too). She finished her remicaid and lunch around 1ish and her nurse just kept putting her off - saying she had other things to do. (she apparently had just one other patient) when Kelly's mom got there she went to ask if Kelly could be discharged and the nurse bit her mom's head off saying she was too busy and was nasty. So Kelly slipped her IV out and taped the cotton over it and off they went which if the dr. wrote discharge instructions and the nurse was being a b**** is NOT signing self out AMA.
:)
She is tired but doing ok otherwise and is sorry we all worried about her. **silly girl** we LOVE her :p
ThosThis whole situation just sucks for her. Kelly is such an angel, she doesn't deserve this constant crap. It's so unfair. I hope you find a new doc, Kelly. Speaking for everyone, it breaks our hearts to see you suffer. And I can't believe the nurses are so nasty. Hugs and prayers that you're feeling better now.
Hoping Kelly is better now- and that she'll be able to find better help.
Oh poor Kelly! :( I hope she'll feel a lot better soon, and stay that way!
Sending hugs and good thoughts.
Sending prayers to Kelly.
Thank you all for your constant care, concern and love for me. I needed it this time.
I'm seeing a new Pain Management doctor and we're tweaking my pain meds to get me on something more constant. I'm currently on 2.25 mcg/h Fentanyl patches, and then I can take 1 norco every 3-4 hours as needed. On Friday, it wasn't enough and my pain got too strong for me to handle on my own.
I had to go to the ER, where basically everyone there was rude and horrible. I just don't understand why they are being so horrible to me. :( I'm a nice person...I don't get it. I TOLD them NOT to call my GI - he's repeatedly told me this is NOT related to Crohn's. They called him at midnight. When I woke up at 7:30 on Saturday, I felt fine physically, but he was mean to me too!!! He told me "I have bigger and more important things to deal with right now" when I asked if I could just go home. He got mad they called him at midnight, asking me when I was taken back in the ER...if you don't want to be called, maybe you should re-think your career!! Idiot. :(
I'm horrifed that my doctor was so mean. I send him holiday cards, bake him goodies each time I come in...I'm nice, I do what he wants me to do...and I'm treated like an annoyance.
My nurse was the same nurse my mom complained about during my last hospital admission before my surgery. That nurse KNEW me when she saw me and didn't miss a chance to be a complete witch to me. I can't win. I guess being a patient with severe, relentless pain makes me an annoyance.
I'd NEVER sign myself out against medical advise. I'm not the one that went through 8+ years of school (yet)...I've always respected my doctors...and even my horrid nurses. This was too much. I WAS allowed to go home, like Staci said. My nurse purposely drug her feet, it was obvious, even to my roommate. :(
I just don't know what I did to deserve such treatment. :( I'm the one who's life is almost ruined because I'm so ill...how come they're so mean to me?
From now on, I will not set foot inside Los Robles again. If I require emergency services again, I'll be going to Cedars Sinai, where patients are respected.
I did pull my own IV out, but at this point, I can pretty much insert my own IV. I've had so many and know what to do. My friend CiCi is a vet tech (animal nurse) and told me what to do over the phone. I applied pressure, added a bandage and left. My nurse called my cell phone while I was driving home, but I didn't answer. I'm sure she'll just write in my chart what I did and that'll earn me a "caution" or "bites" sticker... ;)
I'm sorry to have worried you all...I didn't mean to. I didn't call my mom because I didn't want her to worry. I know my body and knew that all that happened was the tweaking of my pain meds enabled the pain to get too strong for me. I know I was fine and after the million times I've (and my family/friends) already been through it all, I didn't want to needlessly worry anyone.
Thanks so much for your kindness, guys. You're all my angels and I adore you!
Love, Kelly
I apologize for my confusion Kel - we get people that sign out all the time like that - we had a guy Friday nite that was having an acute stroke and signed himself out. I hope that I fixed my mistake in my later postQuote:
Originally Posted by NoahsMommy
{{hugs}}
Kelly, I'm so sorry you're having to go through all this. I would definately be finding a different doctor. That's what I had to do with my female problems. I can't believe the way in which you were treated. You need to document it and write a letter to the higher ups so they will know what is going on at that hospital. This is inexcusable and they shouldn't be treating people like that. No telling how many people have been mistreated.
His medical license should be revoked. What a jerk. If your pain isn't related to Crohn's, then he should be recommending another specialist. That's what my doctors did. Over the years, I've changed doctors at a drop of a hat until I found ones who really cared that I was stooped over , walking like I was 90, and in pain for 30+ years. They all called me at home when they found out my mom died! They didn't have to do that. I'm so blessed. They all believe that in this day and age, there is no reason a person has to be in agony, and if they are, there's a reason, and let's find it. I'm so angry for you! My mom was in the hospital 9x in one year and we always either had or passed by the same ER nurses and doctors, and they always came in to say hello, sorry you're back etc. When the waiting room was full, we got taken right away. The nursing manager is always around and I know that if the nurses don't make the grade, they're reprimanded, suspended or fired. When my mom, at one time, in ICU, got manical and rude (not like her) and God Bless those nurses who took it in stride and were as sweet as could be. I was embarrassed and apologized, but they said not to worry about it. I don't mean to go on and on, but I can't believe YOU of all people, sweet as you are, could be treated like crap. My theory is "what goes around, comes around". Please please find a new doctor and check the medical board for his credentials and any complaints etc. They should be ashamed of themselves.
Sorry, I'll get off my soap box. But you and I are "old pros" at this stuff. I pray for you every night that you feel better. I hate that you're still suffering so. It breaks my heart. I don't know you that well, and I never met you, but I feel like you're a girlfriend and I care very much about you.
Kelly I am so sorry you are suffering this pain and on top of it you are being treated so poorly. Sounds like they are a bunch of bullies and they know how nice you are so you are an easy target....it makes me really mad. You definetely need to find somebody that will treat you right.
You poor thing. :( I'm so sorry that hospital is treating you like that. :(
*HUGS*
I hope your new doctor is much much nicer.
I think that one of the biggest problems Kelly encounters - is that so few people really understand her disease.
I have some dear friends and the husband who is in his 60's, has Crohn's.
Several years ago they stayed with me for over a week for a family wedding.
I can tell you first hand - that this disease causes huge problems for a man who has had it for years. He would not eat so as not to upset his system and several times during the week he could not attend various functions because he simply did not feel well.
You never know............it just hits you............and it is difficult to get your body back in control.
He is also on many medications........all to control it.
Because this is new for Kelly - (just a few years) they are trying so many ways to help her - so she has to take many medications. A clerk can make a bad judgement at the pharmacy - and assume Kelly is just a druggie.
Can you imagine how that makes her feel? It just breaks my heart.
Our support for Kelly means more to her than she could ever express. All of us have been able to follow her ups and downs - and hopefully have a better understanding of why this happens to her.
I am one of the very fortunate ones who knows Kelly - and I can attest to the fact - when she is in pain - she isn't kidding or overreacting........she HURTS!
She needs our prayers and support and it is great we are all here to give her what she needs from us.
Here we have been and here we will stay, as long as dear Kelly needs us. I just wish I were closer :( Try to stay strong and hopeful beautiful Kelly, as hard as it must be at times like this. We love you.
I'm so sorry, Kelly:( You don't deserve any of this...... You're in my thoughts. Sending prayers for you.... Hope someday you can finally leave all your pain behind... (((hugs))))
I've signed myself out of the hospital AMA....twice. Doctors will always go the conservative route....and ....well anyway.
Slick....not giving out patient information is ....for good or bad.... the law in the US. I had a an employee who had a question about a medical claim for his 13 year old son. We had to get the written permission of the son to pursue the question. Goofy...but the law....
Oh my gosh! How out of the loop am I?! :( I continue to hope and pray that someone will be able to help Kelly to feel better. She has already been through so much. I can only imagine how frustrating it would be to do everything right, but still suffer from the pain of this disease. It wears you out physically as well as emotionally.
We all love you, Kell!
**hugs**
I sure hope you are feeling better or will be soon Kelly!!!
I can tell you for sure that no one knows what it's like to live in pain every second of your life until they do it!!! I, myself, feel like giving people a swift kick (if I could get my foot up that high) when they act like arthritis is just a minor thing, like a bug bite. I've had both doctors and nurses act that way.
It may be minor for some people, but for others of us, it's a nightmare.
Lots of prayers and (((HUGS))) heading your way!!!
Kelly, I am so sorry to hear that you are still in so much pain. If your GI doctor repeatedly tells you that your pain isn't caused by Crohn's then what the heck IS causing it? Does he have a theory, or is he just tired and giving up for Pete's sake??? :rolleyes:
(((hugs)))
Kim
oh Kelly sweetheart I am so sorry to hear you are in pain again and getting this apalling treatment, what is wrong with these people, why on earth do they become doctors and Nurses if they have no compassion, if only everyone could be a sweet and lovely as you are my dear the world would indeed be a nicer place.
Kelly you DO NOT deserve to be treated this way, and remember it is them who are in the wrong, they need a good kick in the butt IMO.
I so hope you start to feel better soon and that you do not have to put up with this unkindness that is completely uncalled for, Kelly we all care about you very much and you have become like everyone's daughter, friend, sister,so know that our thoughts are always with you dear as are our spirits. :)
Gini..thanks for your PM..Hope you got my reply as I thought I may have hit the wrong key. Anyway, please email or PM me after you talk to Kelly.
You know that after caring for 2 chronically ill parents and then my own crap, I'm a radical patient advocate. I hate confrontations, I'm an enabler but when it comes to health and attitude and doctors and insurance etc, I'm the meanest, most arrogant *B* you'll ever meet. You have to put these incompetent people in their place. They went to freaking med school for 12 years to help people (assumingly) and we're suppose to trust them with OUR care. Hell, I'm suing the last nursing home my mom was in because I blame them for her horrendous last hours. If Kelly had cancer, God Forbid, she'd be able to find a specialist in THAT specific area.
And if the stupid pharmacist or clerk gives her an attitude, let her tell them to trade bodies. I used to take 7 pills a day, most narcotic pain killers and I couldn't give a rats butt what they thought, cause I'm a paying customer.
Ugh..I'm on my high horse again, I'm so sorry to rant on and on, but I just can't BELIEVE that poor Kelly is suffering so badly, 24/7 with no medical support.
I'm serious, I'll call my cousin and ask if he knows any body in his area from med school or a conference etc.
I'm on a rampage for her. She deserves a decent life.
I love you Kelly.
Just wanted to let you know I was thinking about you and hope your feeling better today:)
I'm sorry, Kelly. You don't deserve to be treated like that. What an inconsiderate jerk! :mad: I hope you are feeling better soon! :) (((HUGS))))
Kelly, prayers and love.
{{hugs}}
Sending you all my love and keeping you in my thoughts and prayers, dear Kelly. I'm so heartbroken for your suffering, friend. Have to read through all the posts but I know this already, you have had to endure more than your fair share of pain and suffering:(:(:(
Love, Sandra
You are all so sweet...I originally didn't want to bother you all with this because I know you worry for me and hurt for me when I'm in pain or scared. Thank you so much...your words warm my heart and bring tears to my eyes.
First, Gini...is the mom I would have chosen (I love my own mother of course! But Gini is just an added bonus)! :) I called her in tears because of how the pharmacist treated me on Sunday - for the second time. I'm usually a strong person, but I'm wearing thin and tearing up a lot quicker now. Gini was right, I'm getting the feeling that because my insurance is now requiring prior-authorizations (required for long term narcotic use), my pharmacists are judging me. I wish they'd LOOK at my other drugs, my diagnoses and the TYPES of specialists I'm seeing before giving me such a hard time. I'm changing pharmacies to a now local, small pharmacy where I got my Fentanyl patches...(stronger narcotic pain patches for chronic pain) and they were as nice as could be! They even gave me a cute sunflower/sparkly pen, to welcome me back to Newbury Park!
I have been refered to a pain specialist and I truly feel validated by this doctor. I had a run-in with who I *think* is the office manager today about getting her to do a pre-authorization after my meanie pharmacy screwed up yet again - but she didn't get to it and I had only 2 pills left. While I see their side of it, I only learned of the mess up (pharmacist on Sunday REFILLED, didn't use a PRE-AUTH code when she refunded my money...so it looked like I picked up my meds on Sunday) this morning at 9:00. I called the office mngr at 10:30 (when I took my lunch) and by 3:30 she hadn't done anything. When I called after work (3:30), I was told she couldn't get to it till tomorrow. When I told the girl that if I don't have my meds, I have to go to the ER and that I respected their time, it was out of the norm for me.
It seems like everywhere I turn, people are messing things up. Ugh.
I ended up paying for my pain meds, yet again. :mad:
I have an appointment on 12/28 to see if my pain is a nerve ending issue. I'm going to have 2 seperate nerve blockers done. If they work, my doctor is going to preform a permanent nerve block to the nerves that are causing/triggering my pain. It doesn't mean my pain will be GONE, but if the first nerveblock works...it'll at least help when he does the permanent procedure. That's a good sign.
I have an appointment at 4:15 on Thursday to talk about my meds...what I have aren't working if I'm still ending up in the ER. Gini and I talked about having something on hand that is much stronger than what I have at home only for emergency use so I'm not going to the ER.
As far as a new GI...that'll be interesting. Dr. Daneshgar (my local GI for the past 3-4 years) is basically the BEST in this area. I'm going to look into some more, ask around. I may just stick with my Cedars doc. He thinks my pain is a nerve ending issue as well, so if I end up in the ER again (will go to Cedars), he'll be on the same page. I don't envision any poor treatment there...they are wonderful.
About complaining. I sent Los Robles a 4 page letter, to the head of nursing over a month ago...still no reply! Now, I'm going to send a letter to the hospital director...with a copy of the letter I sent with these new "adventures". I'll never set foot in that hospital again...ever!! I'm appauled at the attitude...you all know me...I'm sweet, nice and annoyingly positive...even when sick!! I talk to my nurses and doctors...I'm smart (I use medical terms, I get to the point - don't waste their time with unneccesary details, etc.), I'm totally patient, I'm usually a happy patient, etc. Regardless if I was mean or nice, there's NO excuse for that treatment. I'm appauled!!! :mad:
Thank you all again for your kind words, concern and love. :)
I wanted to add that while some people don't agree with AMA, with the things I've seen, sometimes its the best and smartest thing to do. These doctors/nurses are idiots...as you can see from my experiences. I've been lucky that usually my GI respects my wishes and will discharge me when I want to go home.
I hope I answered all your questions. If not, let me know.
(((((PT))))))
Love, Kelly :)
Kelly,
I'm so sorry for everything you've had to go through, honey. You have been through the ringer MANY times over. You certainly deserve a break and to be happy and healthy. That is certainly not too much to ask.
Before I left Michigan, I had a run in with my former doctor. She was an idiot. She gave me a coupon from the McKesson (they make Paxil CR) for a free 30 day supply of medicine till I could find a doctor in CT to take over. Well, what she didn't tell me was that you're only allowed to use one coupon per YEAR!!!! I had already used a coupon, seeing as I was unemployed and flat broke. This is a medicine that I absolutely have to take, or I'll go into withdrawal. What ended up happening was I had to pay for it $78/30 pills out of my own pocket. The wouldn't make an exception in my case, even though it was the doctor's mistake. :eek:
Pharmacists are basically "drug police". They have all sorts of protocol to follow. What really bugs me is when legitimate patients like you, me or anyone else that requires certain narcotics (I occasionally take valium for anxiety attacks) they look at us with suspicion. HELLOOOOOOOO!!!! WE have legit prescriptions from legit doctors. Go after the REAL culprits...people who ARE addicted to prescription drugs that will do anything to get their fix, including forging prescriptions, stealing, lying, etc.
We love you, Kel. Hang in there. You are a very sweet, STRONG person who I truly admire. Don't take $hit from anyone!!!
(((((((((((((((HUGS)))))))))))))))))))))
Kelly,
I really admire your strength and determination despite all you have to face. Good luck to you sweetheart!