HUGS! Thank goodness he will be all right!
I hope you can relax and get a good sleep - nite nite!
Printable View
HUGS! Thank goodness he will be all right!
I hope you can relax and get a good sleep - nite nite!
I'm so glad they found out what it was. Hopefully there will be no lasting effects and he will be back to normal in no time. I'm sure both you and he were scared. I know you must have felt helpless, being so far away. Maybe now you can get some sleep.
What a huge relief for both of you and I'm very glad it was nothing really serious or long-term. This information is from Medline:
"Myositis
Myositis is inflammation of your skeletal muscles, which are also called the voluntary muscles. These are the muscles you consciously control that help you move your body. An injury, infection or autoimmune disease can cause myositis.
The diseases dermatomyositis and polymyositis both involve myositis. Polymyositis causes muscle weakness, usually in the muscles closest to the trunk of your body. Dermatomyositis causes muscle weakness, plus a skin rash. Both diseases are usually treated with prednisone, a steroid medicine, and sometimes other medicines."
It does sound related to what Jenn's father had.
Thanx so much everyone. I looked myositis up on webmd and found essentially the same info as Lizzie wrote from Medline. I guess you're more prone to get it if someone in your family has an autoimmune disease and I have both arthritis and fibromyalgia. I'm so glad that he went to the ER, though. He said that he no longer has a dr. and has been putting off getting a new one because every time he'd get sick, he could never get an appt., so he became annoyed and dropped him. I called my friend who is a nurse and she said that's very common, which is why so many people show up at the ER, especially after 5:00. Well, anyhow, I kept after him to go to a dr., so at least he went to the ER but I think he would've gone on his own anyhow. He was really scared. He said "I didn't even take a shower today because I couldn't raise my arms above my waist plus I was afraid I'd fall in the shower." That's awful for a mom who lives 2,000 miles away to hear and not be able to do anything about it.
As soon as I hear what the second dr. has to say, I'll update. In the meantime, I've got some serious thank you prayers to do. :)
Wow. I am so happy for you and your son that t is nothing serious! I couldnt even imagine what you have gone through, while waiting for him to call.
Just having a diagnosis is a huge relief. And then to have hem say, "should be over this in 48 hours," WOW! Bet you both slept well overnight with all the tension released.
You and your son will continue to be in my prayers.
What a total nightmare for both you and your son. http://img.photobucket.com/albums/v1...s/grouphug.gif
I'll be keeping you both in my prayers.
I'm with the medical folks on this one. He's young and in good health overall, and the hospital is no place for someone like that to be. Patients in the hospital these days are so sick and there are resistant bugs all over the place.Quote:
Originally Posted by caseysmom
I sure hope you have news that he is feeling better today. I too, am glad that he is home and out of the hospital.
Sorry I saw this so late. What a scary thing!!
I am so glad they can treat it. I hope he is much better by now.
but he isn't feeling any better and hasn't really made any progress. I asked how he's feeling and he said "No better but no worse". I guess once the Prednisone kicks in he'll start feeling better but it hasn't been 24 hours yet. His girlfriend is a nurse and she went w/him to the second dr. today and the dr. told him that it is indeed viral myositis and not chronic because it came on so fast and he had that sinus infection previously. He said that some people take longer than others to get over it. He's upset because he still can't do much. He showered today but he couldn't reach up to wash his hair. And he has gigs this weekend that he's going to have to cancel. Plus he's really bummed out that he might miss the Superbowl party at his friend's house. He said "I'm really not looking forward to sitting here all day by myself." So, all I can do is what I've been doing: first, last and always, pray.
It sucks to be sick. :( I hope he can begin to feel better SOON!!!!
I'm glad his girlfriend is a nurse I was worried about him going home alone, maybe she will hang out with him.
More prayers and good wishes and healing energies coming to you and your son, Mary. I'm so glad that they've figured out what is going on and are treating it. Hope he has a quick, complete recovery.
That's right...myositis, we didn't even think of that. Glad it's only viral, better than if it was caused by immune system. Tell your son to relax and be grateful that he'll get better with hopefully no lasting effects. What a scare you must have had, so glad it's nothing more serious.
Mary, I'm sorry I have not posted until now - that blasted W-U-R-K keeps getting in the way. I have been praying for your son and sending out good vibes. I'm glad that it's something that can be "fixed" and I pray that he will be back to normal as soon as possible.
{{{hugs}}}
Whatever it was that my dad had, it lasted for months, but maybe that is because no one knew what it was, and they live in a small, small, country town in PA. They also wanted to make sure it didn't affect his heart. He was out of commission for about 6 months total. Hope your son heals quicker than my dad.Quote:
Originally Posted by Medusa
How scary this all must have been for both you and your son. I'm relieved that they know what is going on but I'm sure until things have cleared up and he is back to normal, you're probably going to be anxious. I would be too.
I hope that his girlfriend will spend the next few days with him as she will know if he needs any immediate medical attention. Hope things get better with each day. :)
I am just now seeing this thread and how relieved I was to get to the diagnosis! This has to have been so very scary! I was just trying to imagine how I would feel not being able to lift my arms above my waist! Bless his heart! I'm surprised he was calm enough to drive to the ER!
I hope that the symptoms will start subsiding soon!
Hugs,
Kim
I'm so glad that it is something fairly easy to fix. You and he must both be so relieved.
I'm sorry I just saw this thread, Mary. My brother had it a while back at it took a few days to feel better, and he had no ill affects afterwards. Praying your son has a quick recovery.
Thank you for that, Karen. When he told me of the paralysis, it truly terrified me, so I can only imagine how terrified he must be. The dr. watched him carefully to be sure that the paralysis didn't spread to his chest and affect his breathing and, if it had, I would've gone to LA. I wish the Prednisone would kick in. I'll know more today after I talk to him. He's asked me not to call because he wants to try to get some sleep. He can't email me because he has no control over his hands. Fortunately, he has voice command on his cell phone because he couldn't dial my number and he had to put me on speaker to talk. He still doesn't have much strength to even raise his voice. This sure put things in perspective for me. Life has its stresses and, of course, money is always one of them but when my boy is sick, everything else falls by the wayside. I've always agreed w/Suze Orman, "people first" but I never realized just how much I truly meant it until this happened. I'll update on his condition after I talk to him today.
Quote:
Originally Posted by caseysmom
That was exactly what I was going to say.
That isn't too likely. She works at night and sleeps during the day. Hopefully, he'll have more control and feel good enough to go to the party.Quote:
Originally Posted by caseysmom
Mary,
I'm so glad that he finally found out what it is. Let him know that Prednisone will increase his appetite and may make him bloat. But that is only temporary. I hope you had a good night's sleep, dear friend. You certainly deserve it.
(((((((((HUGS)))))))))))
Donna
Thank you so much, Donna. Just reading the words "dear friend" comforts me when I can't be there to comfort him. The 3 hour time difference is maddening at times like this, waiting for him to call. Just knowing that the paralysis won't advance is a relief, though, for both of us. I'll keep you all posted, "my dear friends".
I just talked to him and he's very angry now. He said that the Prednisone doesn't appear to be working at all. He still can't do the simplest of tasks. He has mostly prepared food at home so that he can manage taking care of himself but now he can't even peel a banana or take the cap off orange juice or open a cereal box. He's so angry that I couldn't even talk to him. I just do not know what to do. I told him to call the dr. back and tell him but he said "Yeah, try getting ahold of a dr. on Saturday". He can't go on like this. He has to work and right now he can't do much of anything.
Every doctor has an answering service that can page him on Saturday - he should definitely do that. The Prednisone should have kicked in by now.
He did call the dr. and got an answering machine. Not an answering service, a machine that said if it's an emergency to call 911. I told him to call the dr. at the hospital who treated him at the ER and have him paged.
Can he drive back to the er? Maybe he can take a cab to the er if he doesn't want to call an ambulance, from my experience you don't get a lot of help unless you go to the er, things just seem to be treated differently once you are there.
Mary, I'm so sorry to hear that your son's condition isn't improving.:( I hope he'll be able to talk to a doctor or will go back to the ER for help. Lots more prayers and positive thoughts are being sent his way.
Mary,
Prednisone does take time to "kick in". But I'd definitely go back to the ER. You and your son will be in my thoughts and prayers.
((((((HUGS))))))
Donna
I'm sorry that I am just now seeing this. I have read through the whole thread and my heart just goes out to you. I can only imagine the fear and worry and probably anger that you are going through. I will be keeping you and your son in my prayers.
{{{HUGS}}}
Maybe your son responds differently to prednisone than other people. I know when I was put on for short term therapy I was so weak I had trouble moving. Yet my cousin was on it before and it gave him superman energy. I would go back to the ER if he feels like he's not improving. Some people just take longer to recover than others, don't get discouraged, time will heal him.
I was just reading about Myositis and found an interesting quote about it:
"Most experts in the natural medicine field believe that many of these autoantibodies are produced by the body in response to an infection or allergen. When the offending infection(s) or allergen(s) are removed, the production of these destructive autoantibodies stops."
I know in one of your earlier posts you mentioned that the Dr. thought perhaps your son had picked up a virus. But if it 'could' be a response to an allergen or infection, it sounds like things could improve if the trigger was found. (if there is one to begin with).
I'm sure he's not up for 101 questions but maybe when he's feeling a little better in a day or two, he could try and determine if he's been exposed to any new things, foods, enviroments etc..
I hope that he will get better very soon. I know this must be so hard for you, especially since you are far away. I hope you get good news about it all in a day or two.
Oh my goodness! I'm just reading this. How scary for everyone. I can imagine how frustrating this is to feel like this all of a sudden and not making any progress after diagnosis. I would be beside myself with worry too. It's hard enough to have problems ourselves but when our children have problems, it's 100 times worse. I will keep all of you in my thoughts and prayers. :(
I'm glad to hear it's treatable and nothing too serious. Prayers for a swift recovery!!
I'm sorry i just saw this thread now...i feel so terrible.I hope he is feeling better now.I didn't know prednisone also worked for this kind of problem.I thought it was mostly for broncitis issues.
I'm glad he'll be ok though...he's in my prayers.
What a terrible terrible scare for him.And you and everyone who loves him so very much. :(
How is he doing today? I hope the prednisone has kicked in by now. :(