Johanna (Cataholic) & Sister Jessica continue to Request Prayers for young Samantha

[NoahsMommy]

I cannot imagine the pain, frustration and fear you're dealing with.

Please know that you all are in my thoughts...and my prayers. I pray God gives you some hope and relief right now...you need and deserve it.

Hugs,
Kelly

[krazyaboutkatz]

Lots more prayers and positive thoughts are coming your way. Please take care. {{{{HUGS}}}}

[Albea]

Samantha and her family continue to be in my thoughts and prayers.

[Karen]

Today's update from the Carepages:


This is Johanna, and I am posting on behalf of Jessica and Rob:

Sam has been re-admitted to Children's. Sam's heart rate has been brought down, and her blood pressure has been regulated again. Her lungs and heart appear to be fine. She is back on dialysis, and is a little swollen again, due to the increase in fluids. Right now, we are waiting for enough stability to move forward with the next step, which is to have the surgery that she needs. We are just waiting right now. At this time, we are still requesting no visitors, we just want to get through this crisis. Please continue to hold Sam in your prayers.

********

Samantha is in the prayers of my entire congregation, and will be mentioned in prayers at other places, including an acute care prayer group at a hospital west of here this week. Someday Sammy might know how many people she's got praying for her, but for now, we'll just all keep at it. I am glad she is more stable again, and that things are looking a bit better.

[catnapper]

I am still praying for your family. This is such a sad thing to happen to your family. May God make you strong throughout this ordeal.

[luvofallhorses]

That poor girl :( I am holding Samantha close in my prayers as well as Johanna and Family. (((hugs)))

[Soapets]

We said a prayer for Samantha and family during our ChristCare group meeting at church this evening. These prayers will continue for as long as needed.............

[ramanth]

Many more prayers and healing vibes for Sammy.

[petslover]

Still sending prayers to the family. I hope everything works out.

[Tubby & Peanut's Mom]

Still hoping and praying for little Samantha. So sorry to hear about all the setbacks, but it sounds like she's a real fighter and isn't going to let this beat her!

[popcornbird]

Still praying for you, Little Sammy, each and every day. Get well soon little one!

[Cinder & Smoke]

May 23, 2005 at 02:55 PM EDT

It has been exactly 2 weeks now; it feels like a year. They have done a decent job stabilizing Sam again, and everyone is of the opinion that surgery needs to be asap. It looks like we'll be heading back to Shriner's, as the chief of plastics here says that Shriner's is really the best place to handle this--they do this all the time, and it is their world-renowned specialty.

Our concerns earlier had been their insistence on doing the surgery Saturday morning, despite Sam's failing vitals; we've been told that they are aggressive this way in dealing w/skin issues, and that doctors often disagree. The chief attending here told us, in his opinion, he would not have approved of surgery Saturday morning, but he added that other doctors would. It's a very delicate balance of the need for surgery to deal w/the tissue problem, which can make Sam sicker, and the need to keep Sam stable in other areas.

They are going to try to schedule the surgery for shortly after she's off dialysis, so she doesn't have so much time to spike a temp, fall in pressure, etc.; that's what happened last time, as she was off dialysis when she was discharged from Children's, and remained off overnight. They are going to try to either: take her off dialysis, transport and operate immediately; or take her off dialysis, transport, put her right back on at Shriner's, until surgery. (She can't be on dialysis during transport or surgery.) Calls are being made, and as soon as they work something out, they'll tell us.

I'll post again when all this is settled. As always, thanks for keeping us in your prayers; words can't describe how much everyone's constant support means to us.

/s/ Jessica

-----------------------------------------------------------------------------------

Prayers still being offered.

/s/ Phred

[RobiLee]

Prayers and more prayers for you little Sammy!

[Karen]

A new update:

8Â_ May 23, 2005 at 06:39 PM EDT



Now it appears that the plastics team at Children's will do the first surgery sometime tomorrow afternoon; they talked w/Shriner's, and have ultimately left it up to us--Shriner's can't operate until
Wednesday, but Children's can do it tomorrow, and time is of the essence. Shriner's also said they needed to talk to us before readmitting, to make sure we were all on the same page or whatever; we just want what's best for Sam, regardless of some of the misgivings/misunderstandings or whatever it was at Shriner's. I'm sure they won't be thrilled that we're letting Children's do the first surgery, but the chief attending here has told me that Children's has a top-notch plastics team as well, and I have enormous faith in Children's. They do think the follow-up and rehab should be at Shriner's, though; we'll see if they'll still help us at that point. We just don't have the patience for all the politics; Sam is all that matters. It's really a day-by-day thing at this point; I'll post again after surgery, assuming Sam stays stable thru tonight and tomorrow. Keep the prayers coming full-blast.
Jessica

**********

Our prayers are still coming, and especially will be tomorrow afternoon.

[popcornbird]

The prayers continue to come, full-blast. God will take care of you, Little Samantha. Good luck and best wishes.

xoxo

[K9soul]

Prayers and candle still going strong. I will especially be thinking of little Samantha tomorrow. May God be with her and the family.

[Cincy'sMom]

What a roller coaster ride for the whole family. Sammy remains in our thoughts and prayers.

[gini]

Please know you have my continued prayers for Sammy and for your entire family.

[chocolatepuppy]

Samatha is still in my thoughts and prayers.

[luvofallhorses]

Prayers still coming.

[rg_girlca]

Prayers and positive thoughts coming your way sweet Samantha for tomorrow's surgery.

Prayers & Hugs for the whole family.

[krazyaboutkatz]

You're all still in my thoughts and prayers. Take care. {{{HUGS}}}

[Barbara]

I cannot imagine how difficult it is to take all these decisions- and more hard decisions after this days's decision......

All my best thoughts for you and Sammy.

[NoahsMommy]

Praying this mornings surger was successful in helping Samantha feel better.

Hugs, prayers and love,
Kelly

[kimlovescats]

Praying all went well ... hope to hear an update today!

HUGS<
Kim;)

[popcornbird]

I've been praying for Sammy all night and all morning today. Hope everything is going well. ***hugs***

[popcornbird]

Johanna just posted this update on the Carepages. Please everyone, start praying hard for Sammy and her family. Its around 6:50pm in Ohio now, and she's probably undergoing surgery right now, so please, pray hard.


May 24, 2005 at 06:22 PM EDT
This is Johanna posting on behalf of Jessica and Rob;
Sammy will undergo surgery at approx. 6:30pm this evening. The surgery will take several hours......there will be another update when possible.....Please continue to hold Sammy close in your prayers.
Johanna


{{{hugs}}} to you, Johanna & family. May God grant you all the much needed strength and patience during this difficult time, and may Samantha's surgery go well. I pray that she has a wonderful life, full of love and happiness ahead of her.

[NoahsMommy]

Thank you, PCB....I just prayed a prayer that God will be with the surgeons, nurses and doctors...also with Samantha and her family.

Hugs,
Kelly

[Karen]

Praying that lots of angels are watching over Samantha, her doctors and nurses right now.

[Cinder & Smoke]

From the Hospital Care Page

Sammy UpDate ~

May 24, 2005 at 09:19 PM EDT

This is Johanna again, posting for Jessica and Rob;

Sammy made it thru the surgery remaining stable and
is now in recovery.

The next 24 hours are critical so
please continue to hold Sammy close in your prayers.

/s/ Johanna

..

[rg_girlca]

I will pray like I've never prayed before for precious Sammy and her loving family.

[anna_66]

I may not have posted but I've been reading every update on the website and have been keeping faith that she is going to make it through all of this.
Many {{{HUGS}}} for the whole family.

[Corinna]

God sure knew to give little Sammy to such a wonderful family. All the care and love thats being given for this chosen child. Ican identify as my brother is a chosen child also.
Hang tough Sammy you are a stong girl and we are all here for you. Johanna, Jessica , and Rob hugs and prayers to you we are all holding you up .

[Albea]

Prayers and good thoughts for Sammy's recovery will continue to go to her and her family.

[Cinder & Smoke]

From the Hospital Care Page ~ Posted by Sammy's Mom >>

May 25, 2005 at 11:27 AM EDT

Sam is still stable, and had no crises during the night;
the plastic surgeon was in this morning, and said that,
metabolically, she was doing better.

The second surgery is planned for @1:00 pm tomorrow.
They took care of about 90% yesterday, and he said
he has the remaining 10% to finish up, plus cleaning up a bit,
closing things up, etc. Skin grafting will be the next phase.

Sam looks comfortable enough, and
I pray that she's sleeping peacefully;
I think she can feel all the prayers and love
wrapped snugly around her.

Jessica

-----------------------------------------------------------------------

More Prayers on the way!

.

[popcornbird]

Sending more prayers, and lots of love and hugs Sammy's way! Glad to hear she's stable, and doing well.

[chrangharris]

We are still praying for you guys!!

[Albea]

More loving prayers to snuggle sweet Samantha.

[gini]

Prayers are being said for this little angel and her parents.

[Tubby & Peanut's Mom]

Still thinking about and praying for Sammy and her family! Thanks for the encouraging update Jessica and Phred. Hope everything continues to go as well as can be expected with no further setbacks.

Come on Sammy, you can do it! :)

[slick]

I haven't stopped praying either.

[popcornbird]

Praying that all goes well today! {{{hugs}}}

[Karen]

Latest update from the Carepages:

May 26, 2005 at 03:40 PM EDT
The second surgery went fine; Sam remained stable, and should be back up in ICU shortly. The 3rd operation will be Saturday; the doctor will look again, clean up anything necessary, close up, and begin to think about grafting--he wants to begin by using skin from her back, one place she still has usable skin. The top of her head will be the second option, but he assures us the hair will grow back. Another surgery will likely follow on Tuesday. Thanks, as always, for all the warm thoughts; she's a little trooper, and is hanging in there the best she can.
Jessica

******

Sounds hopeful and good, how's her metabolism doing? Is she still on dialysis?

[jenluckenbach]

Unbelievable what that little baby has to go through. :(

More prayers.

[popcornbird]

Glad to hear Sammy's doing well through all of this. She's such a brave little girl. More prayers for her, for a successful surgery on Saturday and Tuesday. May God help little Sammy and her caring family through all of this.

[Logan]

This little girl is a miracle girl, for sure. God certainly has something special in store for her life. :) Our prayers continue for all of you, especially Samantha. Johanna, Lilly, Jonah, we love you all and know this is hard on all of you. :(

Logan

[rg_girlca]

What a trooper that special little girl is.

Prayers still going on for Samantha and her family.

[Cinder & Smoke]

From the Hospital Sammy CarePages >>>

May 27, 2005 at 12:59 PM EDT

Sam remains stable, and we anxiously await surgery #3 tomorrow.
At this point, the doctors involved are happy w/the progress she's making.

I will have Johanna post tomorrow after surgery, and over the long weekend as well, as I won't have Internet access during that time.

Thanks for your continued prayers!

Jessica

--------------------------

More Prayers On the Way!!

[popcornbird]

Still praying and praying! Glad to hear Sammy's doing well. Prayers that everything goes well again tomorrow! Hugs to Little Sammy!

[NoahsMommy]

Its nice to finally hear something positive for Samantha.

Continued prayers coming your way...

[popcornbird]

Here's the latest update on Samantha from the CarePages...


May 28, 2005 at 02:38 PM EDT
This is Johanna, posting on behalf of Jessica and Rob:

I just spoke with Jessica, and Sam has come through one more surgery. This time, there was a fair amount of skin grafting done. The surgeon will do more of this on Tuesday evening in Sam's fourth surgery. The pulmonary people are in with Sam right now. There seems to be a possibility that Sam has a collapsed, or partially collapsed lung. One lung seems to be more troublesome than the other- maybe a mucus plug, Jessica said. This seems to be considered within the realm of 'normal' for someone in Sam's condition. I don't think on the grand scheme of things that this is a significant issue (but, surely one that is still worrisome). On the positive side, Sam produced some urine today! This means positive things for the return of the kidney function. Probably too soon to speak to this, but, positive nonetheless. Prayers continued, please! I will update again when Jessica or Rob indicates.
Johanna


Still praying for you, little Sammy!!! {{{hugs}}}

[CagneyDog]

Prayers coming for Samantha and her family

[gini]

Prayers are continuing for Samantha and her family.

[rg_girlca]

Prayers still on the way for precious Samantha and all her family.

God bless this little girl.

[catcrazylady]

The prayers and thoughts have never stopped for Samantha. Keep fighting precious one!

[krazyaboutkatz]

My thoughts and prayers are still with Sammy and her family. Lots of prayers and positive thoughts are being sent your way. Please take care. {{{HUGS}}}

[jenluckenbach]

My thoughts and prays, too, are still with Sammy. I continue to add er to our weekly prayer chain at my church.

[chrangharris]

THanks for posting the latest update!! We are still praying for her!!

[Karen]

Keep on fighting, Sammy! We're all praying for you! Love and hugs being sent your way, and more hugs for your mom and dad and auntie.

[CalliesMom]

Prayers for Sammy!

[slick]

I just read the latest update and this little angel is quite the fighter isn't she? This precious life has had such a difficult start; it can only mean that when she gets through this, she'll live a long and happy life. We've got to keep the faith. Hang in there Sammy! You've got continuing prayers happening from all over the world and your Auntie Johanna can confirm that Pet Talk Prayers do work miracles.

I look forward to the day, in the near future, when we can see pictures of you safe at home in your little bed.

[Barbara]

Sammy for sure is a fighter and we will take all our concentration to help her:)

[Cincy'sMom]

More prayers for Sammy!

[anna_66]

I just read the latest update and I'm so glad to hear that Samantha is such a fighter and doing so well. I hope nothing comes of the collapsed lung and she gets over yet another hurdle.

Thinking of you all every day and saying many prayers.

[rg_girlca]

The latest update on Sammy's Care Page;

This is Johanna, posting on behalf of Jessica and Rob:
Jessica just called, and reported that Sam has had a pretty uneventful day. The pulmonary people x-rayed the lungs again, and said they looked better today then they did yesterday. The doctor said, "I wish I could take credit for this, but, I think Sam is beginning to heal herself" or something to that effect. Jessica said that they are removing one chest tube today, and the other one tomorrow. That is a step in the right direction. Sam opened her eyes last night, when Jessica was asleep. Jessica asked how she was, and the nurse thought that Sam looked 'scared'. Jessica will be asking that the night nurses wake her from now on, so that she might be there when Sam opens her eyes again.

The road will be long, no doubt about it. I just want to rejoice for the teeny tiny signs of progress that Sam is making. Jessica and Rob are without a computer until Tuesday, and Sam will have her surgery in the evening. So, the next post will possibly be from me again. Keep Sam, Jessica and Rob tightly in your hearts and prayers!

Johanna

[rg_girlca]

A tiny progress is better than a setback.

Keep fighting sweetheart and remember we are all pulling for you.

Prayers and positive thoughts still on the way.

[sandragonfly]

hi there again, little brave one!

sorry I couldn't get to post my heavy thoughts of/for you as soon as I could but here I am! and someone has been updating me about you, your well-surgeries, thank god!

wow, yep, what a marvelous little trooper! I would never imagine anyone, especially this little child could go through so many heartbreaking moments and is at least recovering a little bit! way to go, sammy!!

my heart cries when "her eyes open...", isn't that great? always a joyful moment at the hospital! :) you all will be in my thoughts, forever, really! and continue praying..

many comfort hugs delivered!!
me..

[jenluckenbach]

Thinking of you every day Samantha.

Johanna, How are Sam's arms? I know they were worried for them as well as the legs. And when the update said that the only "good" skin for grafts could come from the back or head I wondered how badly her arms were being effected.

[smokey the elder]

Keep on fightin' little girl. Gentle {hugs} to you and your family.

[catnapper]

Still thinking about her, and praying for her. I hope she is continuing in her small steps towards healing.

[momoffuzzyfaces]

Prayers still flying for you, sweet Samantha! and for your entire family too!

[Cincy'sMom]

How wonderful to hear Sammy is moving forward, even if it is slowly!! She and your whole family remain in our thoughts and prayers.

[Edwina's Secretary]

Always thinking of little Samantha....

[popcornbird]

Constant prayers for Sammy coming each and every day. I'm so glad to hear of her slow improvements. I pray that things will get better and better, everyday, and that soon, Sammy will be able to go home, happy and healthy once again.

{{{hugs}}}

[Miss Meow]

Sending positive thoughts to Samantha - she's a little fighter and I hope she's on her way to good health :).

[Cinder & Smoke]

May 31, 2005 at 10:14 AM EDT

This is Johanna:

For those that have inquired,
a benefit fund has been established at :

The Samantha Chunhui Potts Benefit Fund,
c/o Union Savings Bank,
8534 East Kemper Road,
Cincinnati, Ohio 45249.

[Cinder & Smoke]

May 31, 2005 at 01:50 PM EDT

Surgery went fine, and Sam will be back in her ICU room shortly.

The surgeon was able to finish most of the grafting,
and he said what he did on Saturday looked fine today.

It will take another 10-14 days to see how all the grafting takes.
They will bring her down to the OR again on Thursday for dressing changes. The surgeon said he will likely have little things to clean up along the way.

Otherwise, her vitals remain stable,
though one of the cultures the pulmonary team took the other day
showed some lung infection, so they are treating that.
The goal is to start weaning her off the ventilator,
and letting her do more on her own, though they can't really do that
until she stays out of the OR for a while.

So now we give her a couple days to rest, and see how things go.

Thanks,
Jessica

---------------------------------------

Keep On *getting Better*, Sammy ~
We're ALL Pulling for you!! :)

[sandragonfly]

great! keep going!! for us, little princess! *praying harder for no further setbacks*

[BitsyNaceyDog]

Keep fighting Samantha. We're all here for you, praying for you.

[prechrswife]

Still praying for Samantha...

[popcornbird]

Still praying for little Sammy, each and every day. Keep fighting little one! So glad to hear the positive updates.

{{{hugs}}}

[ramanth]

Still thinking of Sammy...

[Buddy Blaze Lover]

Oh no! I hope Samantha gets over this disease...I don't know much about it, but gosh, it sounds pretty scary!!:(

[Cinder & Smoke]

:)

June 01, 2005 at 02:39 PM EDT

I spent my first night at home last night, which was weird,
but I slept well, and I suppose it did me good
to get away for a while. I know she's in great hands here.

She had a good night, and looks very nice after a shampoo and
new pigtails--complete w/a little dress and matching hair accessories.

She's far less "puffy" today;
they gave her lots of fluids yesterday during surgery,
but she's getting back down to normal now.

No big plans today, and as far as I know, just a dressing change for tomorrow.
Thanks, as always, for the continued prayers.

Jessica

---------------------------------------------------------

GOOD News an all fronts!!

{{{Hugs}}} for Sammy, Jessica and Rob!

[Karen]

Part of getting better and feeling better is looking better, and we are glad Sammy is looking more like herself, and that you got a good night's rest.

[rizzy]

I am glad things are looking better for Samantha, I hope everything continues to improve. Little Sammy is in my thoughts and prayers. {{{{hugs}}}}

[equinelover23]

How horrid... I'm so glad to hear that she is doing better! I'll be sure to keep praying for little Sam... I hope everything turns out good in the end.

[chocolatepuppy]

Samantha is still in my thoughts and prayers, I pray for the day you'll be bringing her home!

[Tubby & Peanut's Mom]

So glad to hear she continues to do as well as can be expected. That's one little fighter you've got there Jessica.

Keeping you all in my thoughts and prayers. I just know she will be well enough to come home real soon.

[krazyaboutkatz]

I'm so glad to hear that Sammy is doing better. Lots of prayers and postive thoughts are still being sent your way.:)

[Barbara]

That's a nice picture now you gave us of Samantha with her little pigtails;) (BTW In Germany you call them rattie tails;) ).

I am so glad she's doing fine after her surgery and am glad you had a little time for yourself- re-charging the batteries a little.

[Cinder & Smoke]

:)

June 02, 2005 at 03:25 PM EDT

The dressing change went fine, and Sam will be back upstairs shortly.

The surgeon said he didn't encounter any problems, and
the grafts he's done so far are taking.
Another dressing change is scheduled for Saturday;
the doctor needs to do some more grafting as well,
but wants to give Sam a rest, so we're not sure when that will happen.

She's still fighting a lung infection;
it's hard to get rid of while she's intubated.

Other than that, we're in the usual wait-and-see mode, and,
as always, hoping and praying for the best.

Jessica

---------------------------------------------------------------

Prayers that the lung infection clears up quickly!!
{{{HUGS}}} for Sammy + Mom & Dad!
.

[momcat]

Prayers are already being prayed for Samantha and all of you that love her. If it's okay with all of you, I would like to add Samantha to the prayer concerns at my church. The congregation will offer prayer every Sunday at our regular service and our prayer team will offer prayer every day.

It is no secret what God can do,
What He's done for others,He'll do for you.....

[Cinder & Smoke]

:)

June 03, 2005 at 01:43 PM EDT

They've gone down a little on Sam's sedation,
so she does open her eyes from time to time.

They are also discussing having a catheter put in on Monday,
which will be an easier way to deal w/dialysis.
Other than that, she's still scheduled for a dressing change tomorrow,
and another one on Monday.

Thanks for all the thoughts and prayers.

Jessica

-----------------------------------------------------------------

Prayers Continue!!

[mina'smomma]

We'll keeping praying things will continue to improve. Please keep us updated.

[ramanth]

More hugs and positive vibes for Sammy!

[slick]

My God, what a strong little girl she is. She just has to feel all the positive vibes and prayers going out to her at this time. This little community never ceases to amaze me. Here we are, people from all over the world, all walks of life, coming together to pray for this precious life that we've never met. It makes me so proud to be part of Pet Talk.

[Cinder & Smoke]

;)

June 04, 2005 at 10:48 AM EDT

Sam's dressing change went fine;
she was back in her room by 8:00 am --
it was an early morning for the plastic surgery team.
He plans on another dressing change Monday or Tuesday.

He said @85% of the grafting has "taken";
he knew he'd have a little to redo, and
then some small spots to take care of.
Her right hand has fared better than her left,
and the surgeon feels she will have a functional right hand;
she lost some fingers on the left, though.

All in all, from a plastics standpoint, things are looking okay.
Her vitals remain stable, and she is resting comfortably right now.

Thanks,

Jessica

------------------------------------------------------------------------------

Let's round up some more Prayers for Sammy, Jessica, and Rob!

[slick]

Thanks for the update Phred. That's very encouraging news. Still sending out daily prayers to this little miracle child.

[Randi]

I'm keeping little Jessica in my thoughts and sending lots of positive vibes. Get well, sweetheart! :)

[gini]

I think about this child and I find myself just staring out into space, not focused on anything in particular.

Many heartfelt prayers are being said for this precious little girl and her parents.

[Barbara]

And again: Sammy our thoughts are with you. Daily. Hourly......

Together we'll pull through.:)

[Vio&Juni]

Poor baby. I am thinking of her everyday, hoping she'll heal sooner.

[NoahsMommy]

Sweet family...I know I've missed alot being gone last week.

I'll continue the prayers for you all.

[luvofallhorses]

Prayers are still going strong for Samantha and family.

[momoffuzzyfaces]

Prayers are continuing here for sweet Samantha and her family.

[popcornbird]

I just finished reading all the updates I missed while I was away this past week. So glad to hear things are slowly improving. I smiled when I read about Sammy's pigtails. How cute. I continue to pray for her every single day. She is such a miracle child. Hang in there little Sammy, and keep getting better! Kisses to you, and hugs to your mommy, Auntie Johanna, and to the rest of your family too!

[Karen]

This morning's update from the CarePages:

23 June 06, 2005 at 10:12 AM EDT
Sam had some difficulties over the weekend, but as to the exact cause, nobody's sure. She spiked a temp a couple of times, but they were able to bring it down quickly; she also had some sort of respiratory thing going on--she was breathing quite heavily for some reason. The doctors checked around, looking for the usual causes, but found nothing different/unusual...it's quite puzzling. A new infection setting in is always a possibility--and a fear--but she's on several strong antibiotics. Her vitals otherwise are stable enough. They used paralysis to stop her labored breathing, and to just let the vent do it for her, and that seemed to help, and they'll take her off the paralyzing today, and see how she does. She will have a dressing change either today or tomorrow; at this point, the plastics team thinks it's too early to insert the catheter for dialysis--they want to insert one in the abdomen, but the skin there isn't healed enough, so they will likely have to wait. She had some production on her own over the weekend, but not much since, so we don't know the full story on that. These ups and downs are expected along the way; Sam's journey will be a lengthy one. It has been one month today; it feels like a year. It's a miracle she's made it to this point, so please keep praying for the miracle to continue.
Thanks,
Jessica

Of course, Sammy and her family are still in our prayers! Kisses to her from us!

[ramanth]

More gentle hugs for Sammy.

[Corinna]

Prayers for the whole family still on going. I will repeat my self and say , God chose a wonderful family for this little one and she is one heck of a fighter.

[Albea]

Prayers and positive thoughts continue for Sammy and her family.

[rg_girlca]

Keep fighting little one.

Prayers and positive thoughts still going on for precious Sammy and her family.

[popcornbird]

Still praying for little Sammy!

[Cinder & Smoke]

:)

June 07, 2005 at 06:59 PM EDT

Sam is just now on her way down for the dressing change --
must have been a busy day in the OR.
She's having a cat scan done immediately after.

A physical therapist was in yesterday and today to
gently work her arms & legs; the guy today got a big surprise when
he lifted her blanket back to find a big pile o' poop. He patiently waited
for the nurse to clean her before he worked on her.

Today she opened her eyes all the way, and looked right at me!
She was fairly awake for quite a while, and
we were able to talk and sing to her, and read her a story.
I can't tell you how it felt to look into those eyes again.

But the biggest news is that I was able to hold her today,
for the first time in over a month!
For about an hour and a half before they came to get her,
she was in my arms, and I was able to rock her to sleep.
She'll be heavily sedated when I see her next, of course,
but once she gets a break from all the surgeries,
perhaps we can start seeing a more alert Sammy.

They will also check her lungs again tomorrow, and
try to determine why part of one is collapsed.

Well, they should be finished shortly, so I'll post again tomorrow.
Thanks for keeping Sam in your prayers!
I'll dream of holding her tonight, and hopefully
she'll have the same dream!!

Jessica

--------------------------------------------------

WOW!! ;)

That's all pretty GOOD News!!
Keep on Improving, Lil Sammy!!
More Prayers on the way!]

[gini]

This news just brings tears to my eyes and they are burning.

My prayers have never stopped. Bless you Jessica..........what joy it must have been for you to hold her and sing to her.

[popcornbird]

The new update brought tears to my eyes. What wonderful news. Little Sammy, keep getting better and better. You are such a strong little girl, and God has been taking such good care of you throughout this.

{{{hugs}}}

[Cincy'sMom]

What great news!! glad to hear Sammy is improving!

[anna_66]

What a wonderful update and how great it must have been to finally hold your little girl again!
I'm glad to hear she's on the right track:)

[lbaker]

My eyes are burning as well. LES is just a crazy, happy circumstance. Oh thank you so very much for sharing this with us and letting us share your happiness.

[RobiLee]

OH, this just brought tears to my eyes. I can picture you holding sweet Sam now. What a wonderful feeling that must have been and to see her look at you had to bring such happiness to you.

I'm always thinking of Sam and keeping her in my prayers. Keep on fighting Sam you can do this. We are all sending positive thoughts and prayers your way still.

Robin

[Maya & Inka's mommy]

Ohhhhhhh, thank you, God!!!!
I am so happy for little Samantha!

[ramanth]

Yay! :)

[Cinder & Smoke]

:)

June 08, 2005 at 09:49 AM EDT

Sam had a restful enough night,
and we are now waiting for the pulmonary team to take
another look at her lungs, and
physical therapy might show up today as well.

Her cat scan looked okay last night, but the official report was not in yet;
the attending physician didn't see anything distressing, though.

Her right hand--which looks good--is undressed and visible now.
The PT will start working w/it, and getting those fingers moving.
It's so nice to see a little hand again!!

She was very active yesterday, and had her eyes
fully open earlier this morning, too.

The plastics team will do daily dressing changes at bedside now,
and some regrafting (most of the grafts took, though)
will take place over the weekend or early next week.

I'll post again later if there's any news.

Thanks,
Jessica

----------------------------------------------------------------------------

THANKS for Your Help, God!

[Barbara]

Good news! That most of the grafts took! And that you can see that sweet little hand.

We are still with you, Jessica and Sammy-girl! Hang in there:)

[Cinder & Smoke]

;)

June 08, 2005 at 03:06 PM EDT

The pulmonary team did their thing and suctioned her out.
They were also able to "puff out" the collapsed parts,
so we'll hope it did the trick.

The attending was in to talk with me prior to this, and give me the current game plan: they want to try and wean her off the breathing tube entirely, as well as start weaning her off some of her (drug) drips, by sedating her less, but still giving pain meds. If they can't wean her off the tube within a week or so, they'll trach her temporarily so she can start rehab. They also want to tinker w/the dialysis, to make it so she can start rehabbing more, by maybe making it intermittent instead of continuous. Even if she needs the trach, they close right back up, so it's not a permanent thing. It looks like she'll do her rehab here at Children's.

The best part about the whole conversation was that she was speaking in terms of rehab and "when she goes home," which was awfully nice to hear. This doctor seemed to think that as long as we can avoid another major infection setting in, Sam should pull through this, w/lots of love and rehab.

From a skin perspective, things look good --
the Dr. said that 85% of the grafts taking is great.

Keep praying for Sam's continued strength,
because she's going to need a lot of it for rehab.

Thanks,
Jessica

-----------------------------------------------------------------------------

:D
We **LIKE** to hear Good News!!

[slick]

Thank you God for keeping watch over this little miracle child. Major LES going on here right now, but very happy tears!

Thank you Phred for posting these updates.

[momcat]

Prayers continue to be prayed for all. The news sounds very good and I hope it just keeps on getting better by the hour! I know you have too much going on right now, but please keep us updated and let us know if there's ANYTHING you need or we can do for you. I'm on your side!!!!!

[catcrazylady]

What great reports!!! I haven't posted in awhile but I have been keeping up with Sammy on the CarePages website. Little one you are always on my mind and in my prayers.

[Tubby & Peanut's Mom]

Such wonderful wonderful news! Come on Samantha, we're all still pulling for you and we know you an beat this! :)

[popcornbird]

Does anyone else around here feel like going up to Heaven and giving God a great big hug for taking care of Sammy and answering our prayers? :D I know I do. Yay for Sammy! Keep getting better, sweet child!

[jenluckenbach]

I too have been watching the care pages with the updates. I always look at them first. I am glad things are getting better, any improvement is so encouraging. Keep your spirits up, she's going to make it through all this. :) You are all in my prayers every day.

[Kater]

Sammy has been in my family's thoughts and prayers. I'm so encouraged by the recent news and could not hold back tears when Jessica wrote about getting to hold her baby girl for the first time in many weeks. :)

Prayers continue to come from Hawaii for Jessica, Rob, Sammy and their entire extended family.

[Barbara]

I hold my breath by reading all that!

It is so good to hear that under these tough and worrying circumstances all indications point in the right direction.

We'll keep our thoughts with you, little Sammy.:)

[Cinder & Smoke]

June 09, 2005 at 09:37 AM EDT

Sam's dressing change went okay,
and they did an ultrasound of her kidneys;
unfortunately, they didn't see much flow in that area,
but that's pretty much what they suspected at this point.
We'll just have to take it as it comes regarding the kidneys.

Her lungs tested positive for a bacteria called pseudomonas,
which she had before; it's one of those opportunistic ones that
strike when the system's down. She's on antibiotics for it, and
hopefully they can wipe it out.

She was alert for a bit this morning, and I played one of her
favorite toys for her -- the Leapfrog alphabet toy
from Uncle Jerry & Aunt Ginny.

Rehab was in later yesterday, working her arms and hip joints,
and they want to start "whirlpooling" her soon as well.

The doctors are making rounds right now,
so I will find out any other news a bit later. That's it for now.

Thanks,
Jessica

----------------------------------------------------------------

Prayers that the Lung Bugs go away quickly!!

[Cinder & Smoke]

June 09, 2005 at 12:10 PM EDT

Another update so soon...
mostly because they are putting a new line in,
and I was booted out of her room.

The new line is because they have to pull one out of her groin area,
so she can start her whirlpool deal--hydrotherapy, in other words.
That's supposed to start tomorrow,
when they are also going to try to switch her from continuous dialysis to the intermittent kind; they're worried that she might not tolerate it, esp. in terms of blood pressure, but in order to start some things necessary for rehab, they want to try and get her off constant dialysis, which gets in the way of everything else.

She's been pretty alert this morning, but they assure me she's as comfortable as possible; I worry about not only pain, but the fear that must be there, too.

One of the kidney docs talked to me briefly about the ultrasound results, and his feelings that things don't look too good in that area. It's likely Sam will be on dialysis for a while.

In better news, the pseudomonas was negative on the last test--
apparently the positive reaction was from when her old tube was in, and she received a new breathing tube the day before yesterday, and so far, that's been clean. They'll retest in another 24 hours, but so far, so good.

Keep the prayers coming, as she has a lot going on the next few days.

Thanks,
Jessica

--------------------------------------------------------------------------

Sounds like a Prayer or two for Sammy's Kidneys is in order ...
*DONE*!

Cinder & Smokey offer to keep her company in the Hydro Tub ...
Bowser says he'd rather just *watch*.

[Cinder & Smoke]

:)

June 10, 2005 at 10:44 AM EDT

Sam is now on her way to the whirlpool;
the actual therapy only lasts 20 minutes or so, but the
prep/transport/unwrap/anesthesia, etc. makes the
whole deal several hours long.

Then they will try the intermittent-type dialysis; lots going on today.

One of the residents just asked me if anyone had talked to me about Sam possibly returning to Shriner's for the long haul; apparently, it's been discussed, which was news to me, so who knows what the story is. It wouldn't be until she was stable enough. The official discussion hasn't taken place yet, but at least we've got a heads-up. Maybe they feel her recovery would be quicker over there, since skin is their specialty.

I'll post more on this development later.

Thanks,
Jessica

-----------------------------------------------------------------------

Prayers that the Wrirlpool Therapy *helps*!!

[popcornbird]

Still praying for little Sammy!

[Albea]

Prayers and get well wishes for Sammy have never stoped and they will continue until she's back home and well on her way to recovery.

[luvofallhorses]

Prayers still going strong for Samantha and her family. (((hugs)))

[Cinder & Smoke]

:)

June 10, 2005 at 03:31 PM EDT

Sam's had a good day, and surpassed everyone's expectations --
she tolerated both the whirlpool and the dialysis,
which is just wrapping up right now.
She didn't even need the vent during the whirlpool, and
was pretty much breathing on her own.
During the dialysis, her bp only dropped -- very briefly --
once or twice, which really surprised the docs.

All in all, she was a SuperSam!

We talked w/one of the docs again, and she thinks that though Sam could probably go without the vent now as far as her respiratory needs, if they took it out & didn't do the trach, they'd have to keep putting the tube back in & out for every surgery/procedure -- and there will be many surgeries. Keeping her as pain-free as possible is a top priority, so they're thinking a trach would be better all around: her face would be free, and she could be more interactive; and it would be much easier to deal w/in surgery.

So a final decision will be made sometime next week;
if they do the trach, she'll be in ICU at least 5 days after, to make sure it's healed properly. And it does seem like they think Shriner's can do the best job w/the skin, so we're still waiting for the final verdict on that as well.
Right now we're just thankful that today went as well as it did, and we'll deal w/the rest as it comes.

Oh, and they found time at the end of her whirlpool session to wash her hair, and new piggies were put in as soon as she was back in her room. Hopefully she'll rest well tonight after her big day.

Thanks,
Jessica

-----------------------------------------------------------------------

WOW! :cool:
Quite a list of *accomplishments* for lil Sammy in just one day!!

Let's hope & Pray there are many MORE like this one to come!!

[Barbara]

Sammy it is amazing what you are doing! What a busy day. Love you with your new piggies:)

[Cinder & Smoke]

June 12, 2005 at 07:56 PM EDT

After Sam's heroic day, she had some setbacks over the weekend.

She was very agitated and in pain Friday night, and they had difficulty making her comfortable. The hospital's pain management team is now handling the treatment plan for this, so the pain control will be consistent.

Unfortunately, the pseudomonas is back, and causing Sam to spike fevers; the trach will be put off until the infection is resolved. It is likely getting in through her very compromised skin, and she is being treated w/antibiotics and a topical cream, as dictated by the infectious disease dept. It's imperative that this--or any other infection--not enter Sam's bloodstream, as that would be devastating.

Please pray extra hard for Sam, so we can get her past this.
She was off dialysis for much of the weekend, but is now back on the constant kind (CCVH), as the intermittent kind (hemodialysis) is more intense/taxing, and they want to go easy on her until the infection is taken care of.

In other news, I was able to hold her again Friday night--yay--
and she has whirlpool treatment again tomorrow,
so we'll hope that goes well again.

She's resting comfortably right now, and
I'm hoping for a peaceful night of rest for her.

Thanks,
Jessica

--------------------------------------------------------------

Prayers that the lung bugs go away ...
and for a Peaceful Night for both Sammy and Mommy!

[popcornbird]

Sending lots more prayers and love Sammy's way.

[Barbara]

Sammy we think of you and all our thoughts weave a blanket as fine as a spider's net;)

[Cinder & Smoke]

June 13, 2005 at 12:16 PM EDT

Well, Sam's back up from whirlpool, and she did fine.
She was a bit "sleepier" this time, so didn't do much breathing
on her own, but tolerated the treatment and was comfortable.

She has a fungal infection along w/the pseudomonas,
which is common in patients w/conditions like her.

The plastic surgeon took a look at the skin while she was in whirlpool,
and wasn't too bothered by what he saw;
he plans on grafting more early next week.

It looks like her trach might go in Wednesday;
they feel she will have been on the meds long enough,
and it would be safe to do.

One possibly positive development:
the nurse said there was a semi-decent amount of urine in her diaper.

We'll take anything we can get.
As always, it's day-by-day here, and
we'll continue to hope & pray for the best.

Thanks,
Jessica

----------------------------------------------------------------------

Prayers from here, too!!

[Karen]

Sammy's still in our prayers.

[luvofallhorses]

Samantha is still in my prayers. ((((hugs)))))

[rg_girlca]

Still in my prayers little one.

[Anita Cholaine]

Samantha is in my prayers. I'm sure she's a strong girl...

[Cinder & Smoke]

:)

June 14, 2005 at 11:55 AM EDT

Another problem-free whirlpool treatment,
and she's back upstairs and napping away.

The plan so far is to do the trach asap--the ENT folks had said they could maybe do it later this week, but the ICU folks want it done maybe tomorrow, so we'll see who wins that one.

The pain meds seem to be working, so we're grateful for that.
Other than that, no new developments,
which is usually a good thing.
Thanks for the continued prayers,

Jessica

------------------------------------------------------

Glad she likes her *Swimmin* sessions!!

[momoffuzzyfaces]

Daily prayers still flying from me for sweet Sam and her family!
(((HUGS)))

[popcornbird]

Nice to hear some more good news. :) The prayers continue for little Sammy and her wonderful family!

[gini]

The prayers never cease for little Sammy and her family.

God is with you all every step of the way.

[NoahsMommy]

I'm glad things seem to be more positive for Samantha.

Hugs and prayers,
Kelly

[chocolatepuppy]

Samantha is still in my prayers.

[luvofallhorses]

Samantha is still in my prayers. ((((hugs))))

[Barbara]

Even I think there is nothing that makes you more tired than a whirlpool, how much more Sammy must feel that:)

Loved to hear about that diaper;)

[Cinder & Smoke]

:)

June 15, 2005 at 07:38 AM EDT

Sam won't go to the whirlpool until later today,
but I wanted to share a moment I had with her last night.

She was opening her eyes here and there, and
I was talking and singing to her;
she looked like she was trying to mouth words,
but I couldn't tell exactly what.

Then I leaned close to her ear and said, "Hi, Sam!"
And then she--very clearly--mouthed "hi" right back to me.
She's still in there!!

Thanks,
Jessica

-------------------------------------------------------

"HI!" Right back at you, Sammy!!

[ramanth]

How heartwarming!! :D Lotsa hugs for Sammy.

[jenluckenbach]

Oh, God bless that little baby. :)

[slick]

Oh my gosh.......LES......:( :( God bless this little child and hold her and her family in his loving arms.

[Cinder & Smoke]

:)

June 15, 2005 at 06:03 PM EDT

Whirlpool went well again, and Sam's looking better, too,
with a lot of the swelling gone.

She's opened her eyes several times today,
and she looks around, and moves her arms a lot.

They might do the trach tomorrow, or else Friday.

Other than that, no news is good news, and she's hanging in there.

Jessica

------------------------------------------------

More **GOOD** News - the kind we like to hear! ;)

[Karen]

Sammy, sweetie, we're all still praying for you! Keep up the good work and plenty of spunk!

[Cinder & Smoke]

June 16, 2005 at 12:24 PM EDT

I was told after today's whirlpool that Sam's skin is looking a lot better,
and that overall, some progress is being made.

They've stopped a couple of the antibiotics,
as too much of that just contributes to yeast/fungal infections.

They are doing the trach this afternoon sometime,
and they might continue grafting on Saturday, so it's a busy time for Sam. The plan after the trach is to let Sam be awake and interact more, while keeping her as pain-free as possible.

I'll post again after the trach.

Thanks,
Jessica

--------------------------------------------------------------

*Prayers* for a successful surgery!

[popcornbird]

More prayers for Sammy!

[Logan]

Prayers continue. Thanks for posting the updates, Phred. While I'm working, I don't get the emails.

Keep getting better, Samantha!!!! :)

[NoahsMommy]

Gosh, this is so much for her to have to go through. You're in my thoughts, little Sammy.

Hugs,
Kelly :)

[luvofallhorses]

You are still in my prayers Samantha and family ((((hugs)))))

[Karen]

A 6 o'clock update from the CarePages:


Change of plans: the plastics doc has decided to do more grafting tomorrow, so they're planning on having the trach done at the same time to avoid 2 separate surgeries. At this time, I'm told it will be in the morning, so keep strong, positive thoughts & prayers coming in for Sam!
Thanks,
Jessica


All day, all night, angels watching over you, sweet Sammy, all day, all night, angels watching over you!

[Cinder & Smoke]

:)

June 17, 2005 at 12:14 PM EDT

Both procedures went fine, and Sam is back in her room sleeping.

She looks a lot better w/out the tube --
you can see her whole face again, which is nice.

The plastics doc is pleased w/how things are looking, and
grafted her butt area today; he also redid part of one leg,
but said that most of the prior grafting took pretty well. He said the whirlpool treatments have been beneficial, as the skin is looking a lot better; she will resume whirlpools in about a week, after today's grafting has a chance to heal. He's hoping today's session was the last "major" grafting, and that he'll only have some small fixes/clean-ups left to do.
Let's hope!

All in all, a good morning for Sam; let's hope for a restful weekend.

Thanks,
Jessica

----------------------------------------------------------

*GOOD* News is Good to hear!!
Feel Better, Sammy! ;)

[Barbara]

Oh yeah, that sounds good!

So good that you are in good hands- at a real good hospital. :)

[luvofallhorses]

That's real good to hear ! You're a strong little girl, Sammy! :) I know you can make it. Prayers still going strong for Samantha and family! ((((hugs)))))

[lbaker]

Just when my faith gets shaky and I wonder "why?" about things - the strength and love for and about Sammy just makes my heart swell warmly.

[popcornbird]

Great news! :D Sammy is such a miracle child. The prayers for her continue.

[NoahsMommy]

What great news!!! :) Its time we had a nice update on little Samantha.

Hope the weekend is just as good, if not better.

Hugs,
Kelly :)

[Tubby & Peanut's Mom]

So great to hear such good news.

Still thinking about and praying for little Sammy! :)

[krazyaboutkatz]

This is wonderful news!!!:D Lots of prayers and positive thoughts are still being sent to Sammy and her family.

[Cinder & Smoke]

:)

June 18, 2005 at 05:54 PM EDT

A quiet day for Sam--nothing wrong with that!

She's been mostly sleeping, but has opened her eyes a few times,
and looks right at us.

She has a little fever, but nothing too major.
A dressing change is scheduled for tomorrow,
so we'll hope the graft sites look okay.

Thanks,
Jessica

------------------------------------------------------------

A little <LOOK> at Dad tomorrow
will be a nice "Dad's Day" Gift!

Happy Father's Day, Rob!! ;)

[slick]

Rob...I, too, wish you a Happy Father's Day tomorrow. May you be graced with that precious little smile on your special day.

A quiet day is a good day for little Sammy. Dear girl, you've never strayed from my thoughts or prayers. Sleep well tonight little angel.

[Cinder & Smoke]

June 19, 2005 at 10:17 AM EDT

Well, she had her dressing change,
and the new grafts look fine at this point.

Her bps were a little wild yesterday, though, and she kept spiking fevers,
so the current plan is to put her back on the antibiotics they recently removed.

It's the same cycle: baby steps forward, and baby steps back.

The pain management team is continuing to tweak things as well,
as they want to lessen her sedation while keeping her comfortable -
it's a difficult balancing act. They haven't had rounds yet,
so I'll post again later if there is more news.

Oh, and on behalf of Sam, Happy Father's Day to all the dads,
especially her own,
as well as Grandpa Hutchins and Uncles Jay, John, Jerry and Jeff.

Thanks,
Jessica

-----------------------------------------------------

Sammy ~

You Feeling Better will be a Great Dad's Day present!

[Cinder & Smoke]

June 20, 2005 at 12:39 PM EDT

Sam was spiking fevers again, but Tylenol seemed to take care of it.

She has an infection in her stool, though, and she will be moved to the isolation room, which is right next door to her current room. That precaution is mainly to keep hospital personnel from spreading the infection to other sick kids up here. This type of infection is very resistant to treatment, but since it's only in the stool, the infectious disease folks are opting not to treat it, in the hopes that it will just exit the body on its own. Also, the drugs used to treat it can have toxic effects, so they'd rather not take that risk.

They have increased Sam's sedation and pain meds, as she often seems uncomfortable. The ultimate goal is to continue enough pain meds to keep her comfortable while weaning her off some of the sedation, but she's not ready for that quite yet.
They also want to give the intermittent dialysis
(hemodialysis) another go this week.
Her trach tube will be changed Wednesday.

Please keep up the prayers; Sam has a lot to overcome.

Thanks,
Jessica

--------------------------------------------------------------

More Prayers on the way!

[Barbara]

This update shows us how many more wonders we still need. Oh Sammy and Jessica- my heart bleeds for you.

[popcornbird]

Little Sammy, I continue to pray sincerely for you, Feel better soon!

[sandragonfly]

sheesh, look what our little samantha have been going through! (definitely much worse than my days)..

I thought, when you grow up...(as I hope these present days you're having will be the only last, hardest days you had and that you survived through most of it!! (thank goodness you're little, you don't have to remember all of these.)

this little trooper've been hanging above me in my thoughts and more are sent! glad you could update us almost daily now... take care, jessica!

[rg_girlca]

Prayers and positive thoughts still on the way for you sweetheart.

[Karen]

From the CarePages:

42 June 21, 2005 at 10:08 AM EDT
Sam had a rough night, and was in a good deal of pain; there will be another meeting w/the pain team to iron out a better plan. It's horrible to see her like that and be powerless to help. She's much more comfortable this morning, and is finishing up a round of dialysis. The major events this week will be continued hemodialysis, a trach tube change, and more tweaking of the pain control plan. I'm thinking plastics will be checking the graft sites again, too, perhaps later this week. Hopefully they will find a way to keep Sam comfortable around the clock--that's my biggest concern right now.
Thanks,
Jessica

*******

Prayers for relief on a more steady basis from pain, oh, Sammy, we love you, and your mom and dad, too. Bless the doctors and nurses in whose care she rests, and help them help her.

[gini]

Sometimes I truly have difficulty reading the updates from the Care pages.

This morning, all I could think of is what Jessica must be going through every minute - and I was ashamed of myself.

I have and will continue to pray for Sammy and her family.

[lvpets2002]

Pleanty of Prayers & whisker kisses coming from myself & all my babies..

[Cinder & Smoke]

:(

Wednesday, June 22, 2005 at 03:01 PM EDT

Sam is still not doing great;
she has had high fevers since yesterday,
and they think a new infection may have set in.

She's back on the antibiotics. She's more sedated now, and on higher doses of pain medication, so at least I don't think she's hurting too much. The Dr also pointed out that at her age it's hard to differentiate between physical pain, fear/anxiety or even hallucinations (caused by the drugs), as far as when she cries. Not that any of that makes it easier to bear.

She's on her way down for a bone scan, because radiology detected a darkened region on the femur, which could be infection or just more necrosis.
Either way, it's not good.

She will continue treatment at Children's;
she will not be returning to Shriner's, mostly due to politics, and the plastics team here has done everything so far and feel it's best to continue w/the same team.

Her trach hasn't been changed yet; ENT is busy in another ICU pod.
Her hemodialysis went okay again; they may not come again until Friday.
At this point, whirlpool should resume tomorrow, and the plastics team
is also supposed to look at her again at that time.

I wish I had better things to report,
but Sam is having a rough time.
Please continue prayers.

Thanks,
Jessica

--------------------------------------------------------------

{{{Hugs}}}, Jessica - for you, Rob, and of course, Sammy.
Prayers on the way.

/s/ Phred

[Barbara]

We are still here Sammy- with the PT web of thoughts and prayers especially for you. I am sure that you can feel it like the softest of blankets.:)

[Karen]

Poor Sammy, more prayers, fervent prayers for the infection to go away, for there to be no more necrosis, for healing and for peaceful sleep for the sweetie.

[popcornbird]

:(

{{{hugs}}} Sammy. Prayers for you, dear one.

[Jennie Lu]

Being new to the site I was just clued in on this situation...Add continuous prayers from Lexington, furry critter-type and otherwise. I pray that God will guide the hands of the nurses and doctors treating Samantha and bring healing to her little body. I also pray for strength and courage for Samantha and family...with prayer all things are possible.

Jennie Lu

[luvofallhorses]

:( More prayers and {{{hugs}}} to you dear, Samantha.

[Karen]

From the Care Pages:

June 23, 2005 at 11:38 AM EDT
Sam was still having trouble w/fevers during the night, but tylenol and a cooling blanket seemed to help. The bone scan was pretty much inconclusive; they are treating her w/antibiotics as if there's an infection there, but may have to do an MRI to confirm. In a worst-case scenario, surgery might be needed, but nothing's definite yet. They changed her trach yesterday, and all is fine w/that. She will have dialysis again shortly; she's been having it for @2.5 hours daily--the goal is to have her on a regular Mon-Wed-Fri schedule. There is some good news today: she went back to whirlpool, and the plastic surgeon was "very pleased" w/how her skin looks; the new grafts look great, and overall, that end of things is going very well. We are very happy that he will be continuing her care. Sam's resting quietly now, and hopefully that will continue the rest of the day. As always, thanks for your continued prayers.
Jessica

*********
That sounds a little better update, more prayers coming ...

[luvofallhorses]

More prayers on the way. {{{hugs}}}

[Craftlady]

I just found this thread. My thoughts and prayers are with the family. Childrens Hospital in Cincinnati is the best place for sick children. They do wonderful work.

[popcornbird]

Still praying. Good to hear a little better news!

[Cataholic]

Latest update:


45 June 24, 2005 at 11:46 AM EDT
Things went well in whirlpool again, and plastics remains pleased w/her skin progress. Orthopedics took a bone marrow biopsy yesterday, and will give it @5 days to culture; the likely infection would be osteomyelitis, which is common in kids w/her condition. It may require surgery in order to remove the infected part of the bone, but we don't know yet. As long as they deal w/the infection, that's all that matters to us at this point. Hemodialysis continues to work well, but there's been a startling development--Sam is making her own urine, and a pretty good amount of it. This started yesterday after the catheter went back in, but it's possible it's been going on a little while, as she often didn't have a catheter in, and the stool output might have been hiding it. I actually saw her urinate yesterday while I was checking her diaper, but then thought maybe I was seeing things. Please keep those prayers coming, as we're really hoping this might mean good things for her kidneys. Sammy deserves a break about now. Other than that, we'll be waiting for the biopsy results, and continuing whirlpool and dialysis. They are again trying to cut back a little on all the drugs, but closely monitoring for any signs of pain, so her little eyes are open more, and with only 1 tube in her nose, we can kiss her fat cheek again.
Thanks,
Jessica







Please, God, let her kidney functions be restored, please!

[slick]

Johanna, my prayers for little Sammy and her family have never ceased and I just know that God will work another miracle.

[finn's mom]

My thoughts are always with her, even if I don't post a lot on this thread. I read it all the time.

[Cinder & Smoke]

Hi God ~

Hey, THANKS fur werkin so hard on lil Sammy's Case!
You must be gettin allua Daily Purrayers we'z all been sendin ...

Miz Joh sez da *pee pump* anna *pooh maker* are startin ta
werk again - Reelee Gud Newz - THANKS, God!!
Da White Coat Gurlz *LIKE* changin diapurz - so we'z goona send
sum extra Purrayers that her plummin keeps werkin!

An are You sure she's *comfortable*, God?
We don't wanna *rush* nuffin ~
but it'd sure be nice iffin lil Sammy kuld feel gud enuff ta
wake up an *enjoy* bein held by Mom & Dad.

THANKS again, God ~
We'll >talk< more at Purrayer Tyme tanite.

/s/ the Prayer Pups anna Purrayer Kat

[popcornbird]

Still praying hard for little Sammy! {{{hugs}}} May her kidneys begin to function perfectly normal again soon!

[luvofallhorses]

More prayers are on the way. {{{hugs}}}

[NoahsMommy]

Keeping Samantha in my prayers. (and her family too!)

[Vio&Juni]

My heart aches everytime I think about her. But at least, SOME good news. We'll keep thinking of her.

[krazyaboutkatz]

Sammy continues to be remain in my thoughts and prayers. I hope that her kidneys will be restored and that she continues to get better and better. Prayers and positive thoughts are also going out to her family. May everyone please take care. ((((HUGS))))

[Karen]

Two updates from today!!!
June 25, 2005 at 04:59 PM EDT



Another little update...she's in her daddy's arms right now, and ate a spoonful of applesauce...but she refused a second bite, remembering that she doesn't like it all that much!! And when I waved my hand in front of her and said "hi," she lifted her arm and waved back! There's no way to describe how much each little moment means to us; they're all small steps Sam is taking to return to us!
Jessica

46Â_ June 25, 2005 at 03:50 PM EDT



Another good day for Sam--her urine output continues to be normal, which is nothing short of a miracle. We pray that it continues, and that the kidneys are producing "effective" urine, i.e., getting rid of toxins, etc. All in all, it's a good sign, though. I've also gotten to hold her a couple times recently. The plastic surgeon was in to see us yesterday, and said that her skin is healing rapidly, and that her whirlpools may end next week, as her skin is clean. He doesn't foresee any additional surgeries anytime soon, though more procedures will likely be necessary down the road. He thinks she's close to being ready for rehab. Since yesterday, they've had her off the vent for 2-3 hours at a stretch, a couple times a day, and she's doing great. She had absolutely no problem breathing on her own, w/just an oxygen mister. So the official weaning of the vent has begun, and they hope to have her off it soon. No word yet on the biopsy results. She had her central line changed over today, and that went fine. She's becoming more alert, and her nurse propped her up this morning to watch the "Wiggles," and she said she seemed quite awake and comfortable. (I slept at home last night and wasn't back yet.) Then later this afternoon, Rob was talking to her, and her tongue flicked out, so Rob spit his tongue out at her, and she spit hers out more! She's definitely in there. We'll hope for continued progress over the weekend--she's being such a strong little girl.
Thanks,
Jessica
*******

All is looking pretty good! Wave to Sammy for all of us!

[Barbara]

Hey Sammy, just sending you a kiss and a wave. This update sounds really good:D

[Tubby & Peanut's Mom]

I haven't been able to check in on this thread lately, but how wonderful it is to hear such a great uppydate!!

Oh Sammy girl, I knew you could do it! Now keep being strong and this will all be behind you before you know it.

<happy tears>:)

[popcornbird]

I have happy tears too. Gosh...what wonderful news! Waves and kisses to Baby Sammy!

[RobiLee]

Hi Sammy!

Just checking in to let you know I'm still thinking about you. I read your mommy's updates and I know how hard you have been fighting. Keep it up, Sammy!

Positive vibes and prayers always coming your way.

Robin

[luvofallhorses]

That is such a good update. :) I am still thinking about you and praying for you dear one.

[rg_girlca]

OMG talk about LES...This is such a good update. Makes me warm all over just picturing little Sammy in her Daddy's arms.

Prayers still on the way that this precious little girl continues to get well and I also pray that from hereon in, the updates will continue to be good ones. :)

[Craftlady]

I found this thread a few days ago, I've gotten through all the pages here of updates and this little gal truely is a fighter. I saw her photo's on the hospital site she is a little doll. Cincinnati Children Hospital does wonderful work. Their transplant teams are very well known.

[Albea]

That is such a good update :)
Little Sammy, you are still in my thoughts. I wave back to you and send you many loving wishes for your recovery.

[momoffuzzyfaces]

Aw, Sammy what good news, indeed!
You keep getting stronger, little one, and we'll keep the prayers flying for you and your family.
(((HUGS))):)

[popcornbird]

More wonderful news! :D

Keep getting better darling Samantha!!! The prayers continue.


June 26, 2005 at 12:57 PM EDT
It's been a good weekend for Sam; her urine output remains strong, though she might not be "clearing" all she needs to; her kidneys just started working, so it will take time for them to do all they need to do. Sam's wearing a lot less as far as dressings--the ace bandages are off, and just some gauze remains on her thighs, arms and bottom. Her skin looks so much better, and she's also less warm with the heavier wrappings off. She's allowed to have more food, and we'd like her to try some mashed potatoes today, which is her favorite. I played patty-cake w/her last night, and she lifted her arms and went through the motions with me; she is so much more responsive now, as they've been decreasing the sedation daily. Rob played a game with her that they often played together, called "E eats everything" (don't know where that came from), where he says that, and tickles her belly, and she would laugh and laugh--well, he did it today, and though her eyes were closed, she smiled very broadly when he did it. It was the first huge smile I've seen on her face since she's been here. We were asked to bring in a bouncy seat for her, so she can be propped up; she keeps sliding down on the bed, so this will make it easier for her. I can't wait to see her in it. She will probably have dialysis again tomorrow, and maybe finish up her whirlpools. No word on the biopsy yet, but they're working on getting an answer from the lab, so they know how to proceed on the antibiotics, as far as short-term vs. long-term. Surgery might not be necessary after all, regardless of the results, so that was good to hear. Keep those prayers coming; she hears you!!!
Thanks,
Jessica

[krazyaboutkatz]

I'm so glad to hear these great updates.:D I'm still keeping Sammy and her family in my thoughts and prayers.:)

[NoahsMommy]

How nice to see something positive. :)

Continued prayers being sent...

[luvofallhorses]

That is such good news! More prayers on the way.

[CagneyDog]

Stay strong Samantha:D

[K9soul]

I've been watching for updates constantly. Samantha is still in my thoughts and prayers. Oh how grateful to God I am to see good news! What a strong little girl Sammy is. I think God must have a special purpose in mind for her.

[Karen]

Yay, Sammy! Pattycake and mashed potatoes all around! :) Still in our prayers.

[gini]

A smile from Sammy for her Daddy. That reduces me to a puddle!

Sammy, you are never NOT in my prayers.

[Cinder & Smoke]

:)

Monday Morning, June 27, 2005 at 10:08 AM EDT

Sam slept well last night, and blew me a little kiss earlier!

Then this morning, I kissed her, and she puckered her little lips several times to give me kisses! She was wide awake, and clapping her hands, and when I asked, "where's your tongue?", she spit it out; when I asked, "where's your teeth?", she pulled her lips back and showed me.
When doctors and nurses come in and say hi to her, she waves her arm at them. And when they do something she doesn't like, she tries to hit them.

She's down at whirlpool now, so will be sleepy until this afternoon; she will have dialysis after her treatment. She's very itchy and squirmy, and this could be due to several things: her kidneys not clearing all toxins; her skin healing/peeling; or her medications.

Last night we heard that the biopsy samples weren't growing anything, and that was 72 hours afterward, so that's good news; perhaps the dark spot they saw on the scan was just some more necrosis from the initial disease, which is common; it's possible the bone can just reabsorb that, so we'll see how things go. Any escape from infection is good.

Sam continues to do great off the vent, and is breathing on her own up to 8 hours a day (at 2 intervals). She continues to pee, but will need the dialysis to make sure it's "effective" ; hopefully the kidneys will continue to get stronger.
Let's hope and pray for a great week, w/even more strength for SuperSam!!

Thanks,
Jessica
----------------------------------------------------------------

Monday Afternoon, June 27, 2005 at 03:59 PM EDT

Whirlpool and dialysis went fine.
Sam was a little squirmy in the early afternoon, but still managed a smile for Mr. & Mrs. C when they visited, and even stuck her tongue out. Grandpa was also able to see her moving about.

Her latest challenge has been diarrhea--challenging for both her and the staff! They are checking to see if some type of infection is causing it; we're hoping to get it under control soon.

The rehab team was in to talk w/me today--the hope is that within the next week or so, Sam can bid farewell to the ICU and move over to rehab. They would like her off the vent completely, and she's definitely moving in that direction.

That's all the news for today; keep the positive thoughts coming.

Thanks,
Jessica

----------------------------------------------------------

This week is off to a pretty Good Start! ~ Thanks, God!

[NoahsMommy]

Thank you, God!!! :) &hearts; :)

Keep it up, sweet Sam!!

Hugs,
Kelly :)

[prechrswife]

It is so great to hear positive updates. Little Samantha is still in my prayers.

[Karen]

From the CarePages:

51 June 28, 2005 at 09:59 AM EDT
Sam slept well again last night, after a couple hours' worth of wiggling around. She blew me kisses this morning and was moving around to the beat of the Wiggles until they came to get her for whirlpool. It's nice to see her so responsive, considering she's still on a lot of meds and still in a fog; we can't wait until she's completely back. It will take @2-3 weeks, at least, to wean her off most of the meds. Her kidneys are still working, but not quite clearing all they need to yet--the kidney docs want to wait and see how she does this week. Hemodialysis will continue. They collected some stool to test for bacteria; hopefully that will come back negative. All in all, Sam's making lots of progress, and we pray that it continues.
Thanks,
Jessica

********
Wiggle giggle, keep up the good work, Sammy!

[Barbara]

*phew* each time I come back to this thread and see the news is positive I can loosen the cramp in my fingers a little:)

But I won't let go:) :) :)

[lv4dogs]

I'm glad to hear that she is improving.
You are all still in my prayers.

[luvofallhorses]

That is such good news! Stay strong little Samantha you can do it! :D More prayers on the way.

[krazyaboutkatz]

This is wonderful news!!!:D Sammy continues to be in my thoughts and prayers.

[Cataholic]

I just can't effectively communicate how much it means to me that you are following this horror with us. Everyday is either a really, really 'high' or a really, really 'low', and it is exhausting at times. My sister has been like a rock through it all, never faltering, always faithful, though, of course, at times, scared beyond belief.

It is nearly unfathomable, the experience. It is beyond words at times. I am so thankful that the doctors are finally talking about Sam leaving the PICU. It will be a long road to recovery, estimated at 6-12 months in the hospital, alone, then rehab at home.

I am sure my sister and Rob appreciate all the love and support pouring in from around the world. I do believe it has made a significant difference.

Thanks again for standing so strongly behind us.

Love,
Johanna

[popcornbird]

Johanna,
Sammy is a little girl that has touched my heart so deeply. Though I have never met her, it truly feels like I have. I can't even begin to imagine how difficult this time has been for your sister and brother-in-law, and of course, for your whole family. I won't ever stop praying for Sammy until she is 100% better, and back home, no matter how long it takes. It brings me tears of happiness when I think of her great improvements, but of course, she still has a long road of recovery ahead of her, and still needs lots of prayers. Rest assured that those much needed prayers will continue. May things get better for all of you soon. I can't wait till the day we hear Sammy has returned home from the hospital. That day will be a day of celebration, and we'll all be celebrating for her, here on PT too. Stay strong, and remain faithful!

{{{{{hugs}}}}}

[DJFyrewolf36]

My prayers and thoughts are with Sam always! God has special plans for Sam, I just know it.

Keep faith and hope!

DJF

[gini]

Dear Johanna,

Sammy has reached out and gripped the hearts of all of us.
The entire situation is so difficult to accept - but it "is" - so we, feeling entirely helpless, can only offer our prayers and reach out to your family.

As I have said so many times, just thinking about Sammy reduces me to tears - either from the sadness of a down day - or the high of reading that she smiled for her Mom - or waved to the nurses.

There are days when it is really difficult to open the care pages to read the latest update. But, then I think of what your whole family is going through and I am filled with guilt - and open it up anyway.

I don't think there is anyone who would not be touched by Jessica's strength. What an example she has become for all of us.

[Maya & Inka's mommy]

You're welcome Johanna! Little Samantha has touched our hearts!!

[Vio&Juni]

We're still thinking about Baby Samantha.

[jenluckenbach]

I truly think about Samantha every day. I read her updates FIRST before anything else. I wonder (with awe) how your family is even surviving this tragedy. I pray for you all to be strong, as that is really all you can do.

[sandragonfly]

HOORAY -- way to go, sammy!!

I've not checked in for awhile, it was hard for me to keep checking daily but always prayed/praying hard for her daily.

I agree with poppy, I feelike I've been around the hospital with you guys...wow. I was going to ask if by any chance when sammy will be going home...but johanna answered, 6-12 months!?

you people have a long, long journey to go..we all will keep and be pulling you all along with us!

I only want to hear and hope to see a new thread that she is home very soon!! thank you jessica so much for updating us as much as you could.. :) I know this can be hard but it's getting easier as long as your little super sammy's getting better!

(ps; I wonder how often does sammy and her family check out our thoughts? daily I hope, this helps them!) --

[Cinder & Smoke]

:)

Wednesday, June 29, 2005 at 01:54 PM EDT

Sam continues to do well,
and has spent a couple of nights off the vent completely;
in fact, she is off the vent more than on it these days.

The diarrhea is improving; they think it might have been due to the methadone being given in such large amounts at one time, so they are handling that differently, and it seems to help. (Her stool hasn't tested positive for anything at this point.)

Apparently, yesterday was her last whirlpool treatment --
the plastics doc says her skin is looking good.

Sam had a wonderful visit w/Uncle John, Aunt Toni and cousins Jamie and Jordan last night, and was busy today w/OT, PT and speech therapy, where they are mainly working on getting her to eat --
she managed some milk today, and maybe a lick of mashed potatoes.

She was wiped out from all the other therapy,
and really just wanted to sleep.
She will have dialysis again tomorrow, and
that's about all the news today!

Thanks for keeping her in your thoughts!!
Jessica

------------------------------------------------------

WOW!
That's a LOT of Good News for one day!!

GO ~ Sammy!! :)
..

[Anita Cholaine]

Im glad of hearing that you're doing well, Sammy...

She's a real fighter, and of couse she's in my thoughts

[luvofallhorses]

It's so good to hear this great news, stay strong sweetie!
More prayers on the way..

[Cinder & Smoke]

:)

Thursday, June 30, 2005 at 09:45 AM EDT

Sam is still a bit tired, and is taking a snooze
in her bouncy seat as I type. She's gone 4 days w/out dialysis now, and they are going to try and hold off until tomorrow; they will use a couple medications today to control her potassium, as she's a bit puffy from that, but her "numbers," kidney-wise, are stable. They are going to do a 24-hour pee collection to see just how the kidneys are doing in terms of flushing things out.

Her bp is up a little, likely due to increased fluid volumes; she's working a bit harder to breathe, but this is to be expected--she's essentially off the vent now, and going at it on her own. The plan is still to transfer her to rehab, probably next week.

I get good-morning and good-night kisses from her (plus the million kisses I force upon her in between!), and when she's not napping, she's fairly alert. She's working very hard to get out of the ICU (though we will miss the amazing staff),
so keep the prayers coming for her continued strength!

Thanks,
Jessica

--------------------------------------------------------------

Keep up the Good Work, Sammy! ;)

[luvofallhorses]

Keep staying strong, Sammy! I know you can do it! :D More prayers on the way.....

[popcornbird]

Awww, those kisses sound SO SWEET!!!! The prayers continue for little Sammy. I am thrilled to know she's doing so much better now.

[Barbara]

It is so great to see that the steps are getting a little bigger. So much love in these kisses- I am glad for you both:)

[Cinder & Smoke]

:)

Friday, July 01, 2005 at 01:24 PM EDT

Sam's a bit more awake today;
she had dialysis late yesterday afternoon, and is finishing up a session now as well. They think her electrolyte balance may have been off (due to fluid overload), and that may have been causing her excessive drowsiness.

She vomited a couple times overnight, so they've stopped her feeds for a while and will change tubes again, and stop directing the feeds straight to the belly to give her a rest. They are also checking for anything like pancreatitis, in case that's causing the vomiting.

In other news, she had both OT and PT this morning, and did very well.
She now has a hip splint as well as hand splints, to keep all positioning correct, and to aid in flexibility/mobility later. Overall, she continues to do fine, though, so we're still hoping for rehab next week.

I also plan on taking some pics of Sammy soon, and maybe Aunt Johanna can put them in the photo gallery, so everyone can see how pretty Sam's looking these days!

I may not have PC access until after the holiday,
so please send prayers Sam's way for a good weekend.

Thanks,
Jessica

----------------------------------------------------------------

Prayers that Sammy, and the Whole Family,
will have a Happie 4th of July Weekend!

[Barbara]

Oh yeah Sammy- we still keep our fingers paws and tails crossed- this time for a happy 4th of July weekend:)