Johanna (Cataholic) & Sister Jessica continue to Request Prayers for young Samantha

[DJFyrewolf36]

Good luck Sammy with those sir juries tomorow! Glad you had a better day today

I find that I can't keep myself away from this thread. Its wierd (in a good way!) that I care so much about a little girl and her family that I don't know in person. One of these days, I would absolutely love to meet Sammy and her parents. I am so in awe at how strong you guys really are and at the overwhelming care that the PT folks have shown.

There is really some good in this world!

[popcornbird]

Prayers that everything goes well for you little Sammy!!! AND, lots of hugs and kisses to you too! Stay strong, and keep getting better!

[Barbara]

Keep my fingers crossed. This sounds like an important day

[Cinder & Smoke]

Friday, July 15, 2005 at 04:28 PM EDT

Another good night for Sam, and a good morning as well.
She did great in therapy today.

I brought in her favorite bag of little toys from home, and she enjoyed seeing them again, reaching out and grabbing them, etc. I brought in one of her sippy cups as well, and she reached right out and grabbed it w/both hands, stuck it in her mouth, and tried to drink -- suspecting it was empty, she pulled it back and shook it to see what was in it, just like our Sammy! She's not allowed to drink & eat freely yet, but they might give her a little drink tomorrow. She sucks on lollipops and her mouth sponge (hospital toothbrush), though. She has held on to the sippy cup all day. I hope we can put something in it soon!

She played a lot in OT, too, and is following instructions really well;
she opens her mouth, holds things in both hands, hands you something when you ask, waves bye and gives high fives. She was also making faces at me earlier, spitting out her tongue and just being playful in general. She raises her arms for us to pick her up all the time now, and it's so nice to be able to do that.

Both procedures went fine; the old central line is out, which is a good thing, as it was growing pseudomonas. She's on a couple antibiotics in the meantime. She has a new line in her arm, and a separate dialysis line in her belly.

She also had a special visit from one of her ICU docs, Leslie,
who's been involved w/Sam's care since day one.
Tomorrow she has each of her therapies once, then she has a day off Sunday, then back to her regular twice a day (each therapy) on Monday. She'll probably need lots of rest this weekend to recover from the busy week!

Thanks,
Jessica

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WW!
Seems like Friday was a *nice* finish to a Great Week!

GO, Sammy!!

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[chocolatepuppy]

Samantha, you are still in my prayers.

[prechrswife]

The last update sounds great! Still praying...

[popcornbird]

Great update! Hopefully, next time, your sippy cup will be full!!! Prayers and hugs for you, sweet child!

[Barbara]

Big smile here. So good to hear of Sammy's progress.

[Cincy'sMom]

So glad to hear Sammy is doing so well!!!

[Cinder & Smoke]

Monday, July 18, 2005 at 12:14 PM EDT

Sam did okay for the most part over the weekend,
but still had some vomiting, and spiked a fever this morning, and
has been sluggish since then.

She enjoyed some family visits, and played a bit,
but unfortunately, they don't think she's well enough for rehab yet,
and she will be transferring to the dialysis floor (3) today,
as she's not sick enough for ICU, but just not ready for rehab.

Besides the vomiting and fevers, her heart rate is up significantly and her bp is lower than usual. Another issue is insurance; ours covers 60 days of inpatient rehab, but if she's not being rehabbed while on the floor (i.e., she's too sick for any therapies today), we "lose" those days.

They'd rather her return to a medical floor, and then come back to rehab when she can take full advantage of it. She will be under the primary care of a nephrologist, and will receive more medical attention than they can offer on rehab.

So... a major, but necessary, step back.
Please send Sam some prayers, as she's having a rough time.

Thanks,
Jessica

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Prayers Offered that the upset tummy gets better!

GO Sammy! ~
We'll stick with you, no matter What Floor you're on!

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[DJFyrewolf36]

It stinks that Sammy is taking a step backward, but I do think that the doctors on the dyalisis floor will take very good care of her! Keep trucking Sammy!! We are all praying and hoping for you!

Sammy continues to be in my prayers! I hope this rough spot passes quickly.

[shais_mom]

Prayers on the way from California - from Zip - Kel- and I

[gini]

Sammy, come on little one............you can do it...............a bit of a setback - now take the next giant leap forward...........we are all praying so hard for you.

[krazyaboutkatz]

I'm so sorry to hear that Sammy is having another setback. Lots of prayers and positive thoughts are being sent her way.

[cyber-sibes]

Prayers for little Sammi's family...it must get discouraging, but your courage and strength shine through!