Scared for my son. Please help w/comments *Update 4/16*

[critter crazy]

Wow. I am so happy for you and your son that t is nothing serious! I couldnt even imagine what you have gone through, while waiting for him to call.

[Freedom]

Just having a diagnosis is a huge relief. And then to have hem say, "should be over this in 48 hours," WOW! Bet you both slept well overnight with all the tension released.

[moosmom]

Mary,

I'm so glad that he finally found out what it is. Let him know that Prednisone will increase his appetite and may make him bloat. But that is only temporary. I hope you had a good night's sleep, dear friend. You certainly deserve it.

(((((((((HUGS)))))))))))

Donna

[Medusa]

Thank you so much, Donna. Just reading the words "dear friend" comforts me when I can't be there to comfort him. The 3 hour time difference is maddening at times like this, waiting for him to call. Just knowing that the paralysis won't advance is a relief, though, for both of us. I'll keep you all posted, "my dear friends".

[Medusa]

I just talked to him and he's very angry now. He said that the Prednisone doesn't appear to be working at all. He still can't do the simplest of tasks. He has mostly prepared food at home so that he can manage taking care of himself but now he can't even peel a banana or take the cap off orange juice or open a cereal box. He's so angry that I couldn't even talk to him. I just do not know what to do. I told him to call the dr. back and tell him but he said "Yeah, try getting ahold of a dr. on Saturday". He can't go on like this. He has to work and right now he can't do much of anything.

[Karen]

Every doctor has an answering service that can page him on Saturday - he should definitely do that. The Prednisone should have kicked in by now.

[Medusa]

He did call the dr. and got an answering machine. Not an answering service, a machine that said if it's an emergency to call 911. I told him to call the dr. at the hospital who treated him at the ER and have him paged.

[caseysmom]

Can he drive back to the er? Maybe he can take a cab to the er if he doesn't want to call an ambulance, from my experience you don't get a lot of help unless you go to the er, things just seem to be treated differently once you are there.

[Emeraldgreen]

I was just reading about Myositis and found an interesting quote about it:

"Most experts in the natural medicine field believe that many of these autoantibodies are produced by the body in response to an infection or allergen. When the offending infection(s) or allergen(s) are removed, the production of these destructive autoantibodies stops."

I know in one of your earlier posts you mentioned that the Dr. thought perhaps your son had picked up a virus. But if it 'could' be a response to an allergen or infection, it sounds like things could improve if the trigger was found. (if there is one to begin with).

I'm sure he's not up for 101 questions but maybe when he's feeling a little better in a day or two, he could try and determine if he's been exposed to any new things, foods, enviroments etc..

I hope that he will get better very soon. I know this must be so hard for you, especially since you are far away. I hope you get good news about it all in a day or two.

[Daisy and Delilah]

Oh my goodness! I'm just reading this. How scary for everyone. I can imagine how frustrating this is to feel like this all of a sudden and not making any progress after diagnosis. I would be beside myself with worry too. It's hard enough to have problems ourselves but when our children have problems, it's 100 times worse. I will keep all of you in my thoughts and prayers.

[ramanth]

I'm glad to hear it's treatable and nothing too serious. Prayers for a swift recovery!!