I feel terrible! Hospital maybe??New UPDATE!

[rg_girlca]

Nothing to worry about Lut with the bone density test like T & P's Mom said.

Prayers and positive thoughts still on the way that the doctors are able to pinpoint exactly what is going on with you.

((((((HUGS))))))

[K9karen]

Sorry for the late response..Bone Density Test? Definitely the easiest test I've ever taken!!!!! I'm glad you saw a rheumatologist. I see one often and he helps me a lot. {Hugs} for better health soon, my friend.

[slick]

Before I get on with my busy workday, I just want to stop and send you some Friday {{{hugs}}} and prayers for a peaceful night's sleep.

[furrykidsmother]

The bone density test from what I have heard is a piece of cake and compared to what you have been through I am sure it will be much easier on you. Continued good thoughts and prayers for you.

[Maya & Inka's mommy]

New update

Well, all tests are done now. There is a bit good news , but also bad news

Good news:
-The bone density test was good: no ostheoporosis

- No new signs of possible MS on my brain-scan

- The 2 meds prescribed by reumatologist work and ease the pain

Bad news:
- Those meds do only take away the pain, NOT the cause. The moment I will stop with those, the pain will be back!

- The neurologist still has NO idea what causes all these problems! It is a big mistery, I am seem to be a "rare" case

- So..... she wants me to see other doctors, in the UNIVERSITY HOSPITAL in Ghent! Oh my, I can feel the dozens of more tests coming... . She says that the cause MUST be found; as I may NOT take those meds for to long a period. One of them is cortizone (Prodnisolone) and the other one can cause visual problems on the long run

So..... I have mixed feelings...; happy because the pain is less , sad because noweone finds what is wrong

[Pawsitive Thinking]

Hugs to you - I do hope they find out what is wrong very soon

[Killearn Kitties]

Nothing worse than being a rare medical phenomenon is there? At least they are going to move it forward and do more tests. I know that's a horrible thought, but it would be good to know what the problem is!

Think positively! We are all there with you in spirit!

[jenluckenbach]

Oh Lut , the NOT knowing is so frustrating. But, enjoy the pain meds while you can and go get those other tests and we'll pray for an answer.

[chocolatepuppy]

I'm sorry you are still going through this Lut. I am keeping you in my prayers.

[anna_66]

I was glad to hear about the bone density test, but sorry to hear that they still can't figure out what the problem is.
I'm still hoping and praying for an answer for you.

[RobiLee]

I'm at least happy to hear that you aren't in as much pain. I am keeping you in my thoughts.

[Tubby & Peanut's Mom]

Ah, the old double edged sword - good news and bad. Good news is always wonderful, but as you well know, it's so frustrating when they don't know the cause of your pain.

I don't know if this will help any, but National Public Radio (NPR) is doing a series on back pain. Here is the link to the series of reports. http://www.npr.org/templates/story/s...toryId=5251891
It's an ongoing series, so you might want to check back now and then to see new articles. They also have some links to organizations that might offer some helpful info also.

I'm just so sorry you're having to deal with all this. I guess the good news is it's not MS, but if it's not then what is it?

[Karen]

So..... I have mixed feelings...; happy because the pain is less , sad because noweone finds what is wrong

We always knew you were special, but in this case, it would be better to be a bit less unique, I guess.

Doncha hate it when doctors say, "Huh. I dunno!"?

[Maya & Inka's mommy]

Doncha hate it when doctors say, "Huh. I dunno!"?

Oh yes!!! I thought I would just explode when she said she had no clue

[Husky_mom]

maybe its not much help but in this site you can type symptoms and such and it tells you probable things that cause it

www.medicinenet.com